Heart Disease Network
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 5th August 2021
If you live in Scotland and been affected by heart disease we want to hear about your experiences and work with you to make improvements.
In Scotland today, around 400,000 people live with Heart Disease. To ensure we can improve access to the right care, treatment, and support, and minimise preventable heart disease, the Scottish Government refreshed the Heart Disease Action Plan which will be overseen by a National Heart Disease Task Force. It is important that this Task Force is influenced and informed by people with lived experience of heart disease.
To support the implementation of the action plan, the ALLIANCE, Chest Heart & Stroke Scotland, and British Heart Foundation have set up a Heart Disease Lived Experience Network and Reference Group to directly hear about people’s individual experiences. Our aim is to ensure people are at the centre, that their voices, expertise, and rights drive policy and sit at the heart of design, delivery and improvement of support and services.
It is important that individual lived experiences are at the heart of this work and would welcome participation at a level that suits and is comfortable for you. By joining the network, you will have access to various opportunities to inform and influence the National Heart Disease Task Force. Hearing from individuals is crucial in identifying priority issues and in raising awareness of the experiences of people living with heart disease.
If you would like further information or have any questions, please get in touch at heart@alliance-scotland.org.uk or phone 0141 404 0231 and ask for Kerry Ritchie.
To join the network, simply complete the attached network form. It would be helpful if you could also return the equality monitoring information and email it to heart@alliance-scotland.org.uk as we want to ensure we are representative.
End of page.
You may also like:
Children in Scotland launch their new report reflecting on the impact of GIRFEC over the past 20 years.
Continue readingThis month's Digital Citizen Panel Spotlight is Heriott-Watt University's Citizen Advisory Network.
Continue readingShare your views on the proposed HCPC fee rise before 17 July to help shape the final decision
Continue readingScottish Children's Health Awards 2026 now open for nominations until 30 June.
Continue reading#TryAToolTuesday raises awareness of free and trusted apps and resources that help people improve and manage their health and wellbeing.
Continue readingImproved voting accessibility for people with Visual Impairment
Continue readingReport calls on the UK Government to ensure Access to Work is fully accessible .
Continue readingHelp shape the new guidelines
Continue readingHelp future technology become more accessible
Continue readingAn update on our ongoing engagement with BT
Continue readingFindings show a need for quicker diagnosis and improved referrals to self management support.
Continue readingThis new resource from the Social Care Institute for Excellence brings together research, data, and practice evidence.
Continue readingThe Patient Information Forum has released a report that shares the findings of it's latest survey on health literacy and digital inclusion.
Continue readingThe ALLIANCE has co-signed Samaritans Scotland's call for change.
Continue readingThe ALLIANCE has produced a report for the Scottish Parliament's Cross-party Group on Deafness.
Continue readingJoin Tommy Whitelaw for a workshop reflecting on his experience for caring for his mum and the importance of asking 'What matters to you?'.
Continue readingIndependent Review of Scotland's Legislative Framework for Children's Care Survey now open
Continue readingRead the Scotland Reducing Gambling Harm programme's event report which explores what makes lived experience platforms successful.
Continue readingAn online library of stories exploring the question, ‘What matters to you?’
Continue readingProfessionals and members of the public are being asked to take part.
Continue readingDigital Team are launching an Online Digital Learning Series, first event is on Tuesday 12th May 10.30-12noon.
Continue readingTake part in participant-led rail journey research
Continue readingThe committee wants greater involvement from lived experience to strengthen their work.
Continue readingLived experience and peer support driving mental health transformation in Scotland.
Continue readingThe new platform ‘MyCare.scot’ is being led by the Scottish Government and Public Services Delivery Scotland.
Continue reading