Networking with Dementia Carer Voices

Section: MembershipPeople and NetworksThe ALLIANCEType: News Item Date Published: 12th June 2019

The Dementia Carer Voices team held a Members Networking Event on 11th June, giving members the chance to discuss what mattered to them.

We would like to thank all of our ALLIANCE members for attending our workshop on compassionate care and intelligent kindness this week.

ALLIANCE Director Irene Oldfather opened the session, giving context to the morning ahead by providing an overview of the achievements of the Dementia Carer Voices project over the last five years. Following this introduction, Dementia Carer Voices Project Lead Tommy Whitelaw spoke about the importance of compassionate care and active listening.

We were then joined by Jane Joy (Nursing & Healthcare Lecturer at the University of Glasgow), who spoke about a new consultation into the Nursing & Midwifery Council’s standards for nursing education.

The consultation has engaged with students and nurses thus far but is looking for more input from people who access services – to assess what, in their view, is working well and what isn’t. Jane asked for feedback relating to:

  • How applicants for nursing education should be interviewed;
  • How nursing students should be assessed;
  • And how best to involve people who access services in nursing training.

We finished by asking all of our ALLIANCE members in attendance what mattered most to them. You can read some of the inspiring responses below:

  • Contact, listening, compassion, time, love and honesty.
  • Being able to make life better for my mum on a practical and mental level xx
  • Kindness and feeling valued.
  • Relationships with children (adults – no grandchildren). Their father (ex-husband), new husband. Involvement in community activities. Being in my garden. Singing in the choir. Contact with wider family, nieces, nephews, cousins. Sharing time with sister – and going to films, theatre, ballet and opera. Listening to music.
  • That I get time for me and people listen to how I am feeling.
  • Having family around me, being treated as an individual, always, being social.
  • Family, friends and living well.
  • Making my own decisions. Being socially active. Having friends and family around. Being listened to. Having my opinions valued.
  • Be heard.
  • People are real and genuine in their approach to caring for people with needs.
  • Family, good friends, being respected, job satisfaction and comfortable home.
  • My health… It’s important I manage my condition in order to be the best mummy I can because my number one priority who matters most is my children.

We’d like to thank Kerry, Laura and Matthew for helping to put the event together!

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