They set out what high quality care should look like at every point in a person's journey.
Crohn’s Disease and Ulcerative Colitis – the two main forms of Inflammatory Bowel Disease (IBD) affect at least 26,000 or around 1 in 200 people in Scotland (these are the current estimates, but emerging evidence points towards this figure being significantly higher). The lifetime costs for treatment and care are comparable to heart disease and cancer.
Last month, IBD UK, a partnership of 17 professional and patient organisations including Crohn’s & Colitis UK, the British Society of Gastroenterology, Royal College of Physicians, and Royal College of Nursing, updated the national IBD Standards that say what high-quality care should look like at every point of a person’s journey – from first symptoms to diagnosis, treatment and ongoing care – and how an IBD service should be organised and managed to deliver this.
The aim of the IBD Standards is to ensure that everyone living with IBD has safe, consistent, high quality and person-centered care, whatever their age and wherever they live in the UK.
A new digital IBD Benchmarking Tool has been developed to help IBD services assess how they are doing against the IBD Standards and plan, improve and monitor their performance. A new IBD Patient Survey allows patients to feedback their experiences of care. Together, the results can support the development of services and make a case for additional resources where needed.
Healthcare professionals are being asked to:
- Register their IBD service to join the 113 registered for the IBD Benchmarking Tool (this link will take you away from our website) – they can see if their IBD service has registered on the services map (this link will take you away from our website)
- Promote the largest ever UK-wide IBD Patient Survey (this link will take you away from our website) in their service to find out how their IBD patients view their care against the IBD Standards (email firstname.lastname@example.org to order flyers and posters to display in clinics)
- Incorporate the IBD Standards in the overall design and work of their IBD service
People living with Crohn’s or Colitis can:
- Fill in the largest-ever UK-wide IBD Patient Survey (this link will take you away from our website) – to help push standards of care for everyone affected by Crohn’s and Colitis