Participants sought for new research study on supporting a loved one - discharged from hospital to home - at end of life
Dr Siew Lee, Robert Gordon University, is leading an upcoming study funded by NHS Grampian.
If you have experience of supporting a spouse, a family member, a relative, or a friend who was discharged from hospital near the end of life, then they would like to speak to you. Hearing about your experiences will help to improve the care of people who spend their last days, weeks, or months at home. The research also helps to give a voice to those, like you, who supported them during this difficult time.
We know that many patients and their families would prefer home-based end of life care. However, without appropriate support this can be a frightening experience. Previous research has shown people who care for others may feel ill-prepared to cope at the end of life at home. Since 2016, those who support and care for others at home in Scotland are entitled to an individual assessment of their needs (The Carer (Scotland) Act 2016) before their loved one is discharged from hospital to home. Those who are informed and supported are likely to feel better prepared to cope with the experience of caring for their loved one at end of life. It is important that those who use services can help plan how care can be best delivered.
If you are recently bereaved (between 3 months to a year post bereavement) and have cared for your spouse or family member or relative or friend at home during the last few days, weeks, or months of life, then the team would like to hear about your preferences for support, and experiences of the support you received when your loved one’s death was imminent. They want to understand what worked well and what could be improved in end-of-life support.
Participants are sought from the Grampian area, for a conversation as soon as possible. Participants will be interviewed by phone or using a secure online platform, on a one-to-one basis.
If you would like to know more about the study, please contact Dr Siew Lee at: email@example.com or 01224 262605