The ALLIANCE has today launched Scotland’s first jargon-free introductory film that explains how our data is used in healthcare.
Data is a vital resource. Through technology, it’s being increasingly shared and used (securely) by the healthcare professionals that support us, to improve wider NHS/care services and to do research.
While the data responsibilities of healthcare organisations are really important, equal attention should be given to the people’s perspective. We, as individuals, should be made aware of and understand how our data is used. Being more informed can help us to have a constructive dialogue and assist our decision-making (for any consent options) on how our data is used.
We need better explanation to support better understanding. We must move away from terminology and adopt much more accessible language when we discuss data and deploy a range of tools so people can participate. And that’s exactly why we created this free, lay video which we would really like others to use.
Research also shows that only third of people in Britain have heard a fair amount about how the NHS is using health data. This isn’t good enough so we must raise the profile of data use too. This is best done in collaboration with many organisations spreading the word about data use collectively via all our networks.
So have a look at our film and better still tell people about it, put it on social media, your website and use it as an introduction to data use within your own work. And let’s start to talk about #ourHealthcareData.
You can also watch this on Vimeo (this link will take you away from our website).