Section: Digital

NHS Education for Scotland Digital Service (NDS) are partnering the ALLIANCE in delivering this ReSPECT Engagement Programme

The ALLIANCE in partnership with NHS Education for Scotland Digital Service (NDS) is hosting an engagement programme for people to share their views and experiences, and assist in the design and development of the public facing component of the digital Recommended Summary Plan for Emergency Care and Treatment (ReSPECT).

Recommended Summary Plan for Emergency Care and Treatment (ReSPECT)

The ReSPECT process creates personalised recommendations for a person’s clinical care and treatment in a future emergency in which they are unable to make or express choices.

These recommendations are created through conversations between a person, their families, and their health and care professionals to understand what matters to them and what is realistic in terms of their care and treatment.

Patient preferences and clinical recommendations are recorded on a non-legally binding form which can be reviewed and adapted if circumstances change.

The ReSPECT process can be for anyone but will have increasing relevance for people who have complex health needs, people who are likely to be nearing the end of their lives, and people who are at risk of sudden deterioration or cardiac arrest.

Aim of this engagement programme

The aim of this engagement programme is for NDS to understand how people with lived experience, their carers and families, could interact with digital ReSPECT directly, with a view of developing and improving service delivery.

We will deliver this programme in the following ways:

  • We will deliver three digital engagement events with groups of people with lived experience, their carers and families and organisations representing the interests of people who have or would benefit from the ReSPECT process.

o Workshop 1, Wednesday 21 July 10.30am-12 noon: THE BRIEF- an open discussion to first engage with people who have already got a ReSPECT form or would benefit from one.

o Workshop 2, Wednesday 25 August 10.30am-12 noon: IDEAS- a session aimed at coming up with ideas on what a public facing ReSPECT product could look like.

o Workshop 3, Wednesday 29 September, 10.30- 12 noon: DESIGN- this activity will focus on testing and giving feedback on some initial designs of a digital solution, which reflect previous activities

There is an opportunity for people with lived experience and their carers and families to participate in interviews with the NDS team.

• There is an online survey  (this link will take you away from our website) for individuals, families, and carers to comment on their experiences, insights and views for development and improvements.

This work is part of the engagement activity led by the Digital Citizen Panel, to find out more, please email louise.coupland@alliance-scotland.org.uk

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