Raven’s story – life during COVID-19

"Each day it’s getting harder and harder to manage my pain and fatigue levels”

“Living day to day with a disability that is unpredictable at the best of times is stressful but with the outbreak at the moment I find I am having a flare up due to stress and worrying.

There is an upside in that I have not needed to panic buy hand sanitiser as I already have a collection in my home because I have a compromised immune system.

But other things such as food have been very hard to come by as the local shop is empty. I did get a dirty look the other day for taking the last milk because I look healthy enough to travel further away. I am in the high risk category too.

Having an autoimmune disorder I had a difficulty decision to make stay on my immuno suppression and be at a bigger risk of catching the virus or come off my meds and lower the risk but increase my pain levels and flare up. Ultimately I picked to come off my meds. Each day it’s getting harder and harder to manage my pain and fatigue levels”.

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