Man standing on stairwell at train station in checked shirt

"I was getting no support at all. I had a couple of suicide attempts as well. I didn’t want to live"

“Epilepsy takes over someone’s life, takes over social circles, takes over their friendships. You’re taking medication which causes severe side effects, that gets you down.

I was having too many seizures and had to leave university and had a bad case of depression. I was enjoying university, but I was injuring myself badly, dislocating my shoulders, breaking bones. I was  in my flat myself. I was getting no support at all. I had a couple of suicide attempts as well. I didn’t want to live.

Everything was so bad. I didn’t have friends about me and people like family members were so stand-offish and didn’t understand too much about epilepsy and were being judgemental about it.

The toughest thing has been injuries, having to go through the whole hospital process, having to have a shoulder replacement, having facial injuries, injuries to my head, that’s the worst really.

I ended up in hospital a lot. Being a young man as well and having to have a community alarm in my house, having to have bed sensors, having to have a wet room put in for my safety and having to have your bath taken out, not allowed to cook. I managed to nearly burn down a house three times.

I got involved with Epilepsy Futures which was a health and wellbeing project with Epilepsy Connexions. I went and I was an absolute nervous wreck, I literally crawled in the door, but it is the best thing I’ve ever done. It was meeting friends in the same situation. They were there to change their lives.

Now I’m a volunteer, I’m helping people. I want to raise awareness of epilepsy and mental health. People don’t understand about both conditions and about how they’re related as well.

I’m doing absolutely fantastic and I never, ever thought this would be the case. I’m just at a place where I want to be. Going from not having confidence to having amazing confidence is such a big thing. I wouldn’t even go out the door. But I’m not scared anymore. I don’t have the same fear.”

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