"Tired, sad and frustrated and at an all time low, everyday I was thankful I had survived"

“It’s easy to forget about yourself when you have children, but add not only 1 but 2 children with disabilities and somehow you disappear.  Looking back Juggling 4 kids, work, GP and consultants appointments along with frequent hospital admissions, I often found myself functioning on autopilot.

Tired, sad and frustrated and at an all time low, everyday I was thankful I had survived.  Every night when I went to bed, I dreaded what new challenges tomorrow would bring.

Carer was often a word I heard in my line of work, but for a long time I didn’t recognise myself in this role.  I was a mother, looking after my children and doing what you do.  Taking time out for myself or accepting help, left me feeling like a failure and I was racked with guilt.

Even though I am still on a caring journey, I have realised how important it is to take care of my own health and well-being.  I use work as my escape, taking pleasure in the opportunity to be me for a few hours a day.  Understanding and support from my colleagues has enabled me to continue to work.  Speaking to other carers I now know I am not alone, and it can be a difficult to balance work or study along with a caring  role, especially if you don’t have the right support.

Although some days caring can be tough and even a thankless task, seeing my children thrive and continue to challenge their own disabilities has given me the inner strength to continue fight for equity and more support for unpaid carers.”

Continue reading stories: