{"id":24165,"date":"2022-10-05T11:31:26","date_gmt":"2022-10-05T10:31:26","guid":{"rendered":"https:\/\/www.alliance-scotland.org.uk\/?post_type=humans_of_scotland&p=24165"},"modified":"2023-08-15T11:51:29","modified_gmt":"2023-08-15T10:51:29","slug":"sarahs-story-keeping-positive-with-cowdens-syndrome","status":"publish","type":"post","link":"https:\/\/www.alliance-scotland.org.uk\/humansofscotland\/sarahs-story-keeping-positive-with-cowdens-syndrome\/","title":{"rendered":"Sarah’s story- keeping positive with Cowden’s syndrome"},"content":{"rendered":"

“Cowden\u2019s syndrome is such a rare condition that quite often people don’t actually join the dots together until quite far down the line. I was diagnosed because of what happened to my mum. You honestly couldn’t write this story.<\/p>\n

She went into the attic to get my sister’s birthday decorations. And we had a wobbly ladder. So, she fell and ended up with a big bruise on her arm. She went to the doctor and thought, \u201cI\u2019ll get this bruise seen too, and whilst I’m there I’ll ask about the headaches that I’ve had for months.\u201d<\/p>\n

The doctor told her it was a benign brain tumour, and she had surgery and she recovered. But they ended up testing the tumour to see what it was, and she ended up getting a phone call later on to say, \u201cyou’ve got Cowden\u2019s syndrome.\u201d As part of that she was tested and given regular cancer screenings, falling in with the recommendations. Not long after that, she found out that she had breast cancer and endometrial cancer very close together. She did quite well for a wee while, but things returned, and she passed away.<\/p>\n

We all got tested because of my mum, and I was diagnosed quite young. I think what
\nhelped me was that my mum was always so positive, she was somebody that could
\njust have a laugh. She would say \u201cright now it’s not great, but we’ve just got to get on
\nwith it, and do the best we can.\u201d I saw her go through so much, and in some ways, it
\nfelt like watching a car crash in slow motion. You see her going through all of that
\nand you think, \u201coh no, that could be me one day.\u201d At the same time, you see her go
\nthrough that and still have the strength of character, and say, \u201cI’ll go and do the
\nthings that I enjoy\u201d and I would much rather be like that than feel like I couldn’t leave
\nmy bed.\u201d<\/p>\n

Read more Humans of Scotland stories.  <\/a><\/p>\n

End of document.<\/p>\n","protected":false},"excerpt":{"rendered":"

“Cowden\u2019s syndrome is such a rare condition that quite often people don’t actually join the dots together until quite far down the line. I was diagnosed because of what happened to my mum. You honestly couldn’t write this story. She went into the attic to get my sister’s birthday decorations. And we had a wobbly … Continued<\/a><\/p>\n","protected":false},"author":85,"featured_media":24297,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"15360,14626,23376,23322,16172,14687","_relevanssi_noindex_reason":"","footnotes":""},"hos-category":[739],"humans_tags":[487,491],"area_of_work":[],"strategic_priority":[],"class_list":["post-24165","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","hos-category-long-term-conditions","humans_tags-cancer","humans_tags-rare-condition"],"acf":[],"yoast_head":"\nSarah's story- keeping positive with Cowden's syndrome - Humans of Scotland<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.alliance-scotland.org.uk\/humansofscotland\/sarahs-story-keeping-positive-with-cowdens-syndrome\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sarah's story- keeping positive with Cowden's syndrome - Humans of Scotland\" \/>\n<meta property=\"og:description\" content=\"“Cowden\u2019s syndrome is such a rare condition that quite often people don’t actually join the dots together until quite far down the line. 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