The 2026 Scottish Parliament election takes place in the context of serious, overlapping challenges. Half of adults in Scotland now live with a long term condition and the number of unpaid carers continues to rise. Ongoing pressure on public finance negatively impacts the delivery of essential public services and the third sector is stretched to breaking point. At the same time, our everyday rights are under increasing threat.

However, the challenges Scotland faces are not insurmountable if we collectively rise to meet them. In this manifesto, the Health and Social Care Alliance Scotland (the ALLIANCE) set out our solutions to these challenges and call on Scotland’s political parties to offer a vision of hope for the next five years. We have a vision of Scotland as a human rights leader, with fair finances and an equitable economy. A Scotland where in equal partnership with the third sector, we renew social care and deliver public services for everyone, rooted in effective prevention, early intervention, and lifelong support.

Ahead of the 2026 Scottish Parliament election, the ALLIANCE and our members call for all political parties to make the commitments below. You can access the ‘Our Collective Voice’ manifesto in several formats:

• Via the chapter links at the top of the following sections
• The designed manifesto PDF
• A plain text DOC
• An Easy Read PDF or DOC
• A British Sign Language (BSL) version

Scotland as a human rights leader

Incorporate human rights

• Pass a Scottish Human Rights Bill that incorporates a range of international human rights and accountability directly into Scots law.
• Maximise the capacity for incorporating human rights in Scotland, following the Supreme Court ruling on the UN Convention on the Rights of the Child Incorporation Act.
• Enhance the powers of the Scottish Human Rights Commission and ensure it has adequate and sustainable resources.

Act, monitor and report on human rights

• Prioritise implementation of Scotland’s second National Action Plan for Human Rights (SNAP 2).
• Proactively respond to UN human rights recommendations through appropriate action planning and resource allocation.
• Ensure that robust, disaggregated equality and human rights data is systematically gathered, analysed, and used to inform decision making.
• Improve human rights monitoring and reporting, underpinned by a national human rights tracker tool that includes data from a range of sources.

Realise the right to health

• Ensure equality and rights are explicitly mainstreamed and embedded within all public services.
• Take action to support a Right to Rehab approach through local and community services.
• Embed a Right to Palliative Care approach across services.

Fair finances and an equitable economy

A sustainable third sector as an equal partner

• Embed and deliver fair funding for the third sector across all public sector funders, including sufficient multi-year funding.
• Reimburse Scottish third sector organisations for the increased cost of employer National Insurance Contributions.
• Formally acknowledge the third sector as an economic investment and contributor, including them as an equal partner in public service reform and financial decision making.
• Include the third sector in the Scottish Government’s contributions to ongoing development of the UK-EU relationship.

A human rights and wellbeing approach to finance and the economy

• Embed human rights budgeting and Wellbeing Economy approaches across all areas of fiscal policy, including through a tax system that raises sufficient revenue to sustain services.
• Carry out robust equality and human rights data gathering and analysis to measure and assess the impact of public finance decisions.

A progressive approach to social security

• Deliver further improvements to the Scottish social security system including greater flexibility for unpaid carers.
• Implement the recommendations of the Independent Review of the Adult Disability Payment to deepen the human rights basis for social security.
• Ensure that all devolved payments are set at adequate values.

Renew social care

Deliver social care reform

• Develop national oversight and scrutiny of social care to end the postcode lottery and improve standards, access, quality and accountability.
• Reform commissioning and procurement to take a collaborative and human rights based approach.
• Abolish non-residential care charges.
• Substantially increase financial investment in social care, to ensure demand is met and third sector providers are adequately funded.

Build a valued service where everyone has a voice

• Provide equal rights and support for all Integration Joint Board (IJB) members, ensuring that voting rights for lived experience, unpaid carer and third sector representatives translate into meaningful input and influence.
• Actively involve people with lived experience and the third sector in the health and social care reform process.
• Improve pay and conditions for social care staff and address institutionalised gender bias.

Public services for everyone

Meet everyone’s communication and access needs

• Develop a new See Hear Strategy and create a Scottish Government Sensory Policy Unit for a prioritised, joined-up approach.
• Provide a clear legal right to inclusive communication.
• Pass a Digital Inclusion Bill to realise the vision of Scotland as an ethical digital nation.

Services that work for people of all ages

• Refocus attention on the importance of Getting It Right For Every Child (GIRFEC), whilst strengthening implementation, data gathering and reporting.
• Introduce an older people’s health and social care strategy and action plan.

Improve and invest in tackling women’s health inequalities

• Drive the systemic change needed to ensure all women across Scotland enjoy their right to timely, accessible, suitable, and good quality healthcare.

Better support people with learning disabilities, autism and neurodiversity

• Pass a Learning Disabilities, Autism and Neurodiversity Bill.

Strengthen prevention and lifelong support

Strengthen prevention

• Ensure policy intent on prevention is implemented.
• Protect and increase investment in the Community Links Worker approach.
• Commit to maintaining the Self Management Fund and the innovative projects it supports.

Deliver effective and lifetime support for long term conditions

• Ensure that any overarching framework complements rather than replaces condition-specific action.
• Invest in greater support for people with long term conditions.
• Develop a supportive approach to health and work.

A reenergised approach to mental health

• Develop rights based mental health and incapacity law by implementing the recommendations of the Scottish Mental Health Law Review.
• Invest in mental health services, including renewed funding for the Communities Mental Health and Wellbeing Fund.
• Roll out the Living Well: Emotional Support Matters approach to support the mental health and wellbeing of people with long term conditions and the third sector organisations that work for and with them.

Ahead of elections to the UK and Scottish Parliaments, the ALLIANCE typically publishes a manifesto setting out our key asks for the candidates and parties. Some of our previous manifestos are archived here for information.

You can find a range of videos, from webinar recordings, to lived experience stories on our Youtube. All videos have been reviewed for clinical accuracy.

You can find all videos below, or together via this playlist:  https://www.youtube.com/playlist?list=PLDgTzLd2QrJG9IRcU715S5_XgPiUeH4gw 

Menopause

Menopause 101 (5.37 mins)

Menopause and mental wellbeing (1hr 9.22 mins)

Menopause and the Workplace, webinar recording  (52.56 mins)

Menopause and Sexual Wellbeing, webinar recording  (56.20 mins)

Talking Menopause on World Menopause Day 2023, webinar recording  (56.42 mins)

World Menopause Day 2024, webinar recording  (52.58 mins)

Menstrual Health

Periods are normal – but what is a normal period? webinar recording (57.32 mins)

Understanding Endometriosis, webinar recording  (55.42 mins)

A fibroids journey  (8.51 mins)

PCOS Mythbusting , webinar recording  (58.44 mins)

Everything you need to know about PMS, webinar recording  (53.36 mins)

Managing menstrual health conditions  (6.49 mins)

Living with adenomyosis  (9.24 mins)

What’s a normal period for young people, webinar recording (34.33 mins)

Sexual health and reproductive health

Confident about contraception, webinar recording  (40.01 mins)

Understanding female reproductive anatomy, webinar recording  (39.08 mins)

Women’s heart health

Mythbusting women’s heart health, webinar recording (1hr 11.40 mins)

Women’s heart health: voices of lived experience  (8.54 mins)

Other areas

Prioritising pelvic health, webinar recording  (55.27 mins)

Optimising future health, webinar recording  (1hr 11.59 mins)

Taking care of your bowel health – webinar recording  (1hr 8.59 mins)

We want women, third sector partners and policy makers to have access to quality evidence on women’s health to help inform their decisions – about their own health journeys, the services they deliver, the policies they put into practice.

Within our women’s health programme we have worked with researchers, third sector partners and communities to produce and contribute to resources that highlight the latest research and best practice around women’s health experiences.

Conversation Café toolkit on women’s health

This toolkit brings together resources, recommendations and guidance on hosting independent Conversation Cafes to encourage information sharing and peer support on areas of women’s health. Conversation Cafés can act as spaces for debunking myths and dispelling shame and stigma that may surround many health conditions and experiences.

This toolkit is for anyone who wishing to set up and host their own Conversation Café to discuss women’s health – whether that be with friends, in a workplace, or in the community.

Complimenting the toolkit is a Conversation Café resource hub – found here.

Mapping peer support for women’s health in Scotland: Insight and impact across practice and policy

Report TBC

Women’s experiences of discrimination and the impact on health: research

This Scottish Government report explores the various forms of discrimination that women have experienced – both within and outwith healthcare settings – and the consequences this has had on their health outcomes. The ALLIANCE supported lived experience input into this Scottish Government research, and worked closely with the research team.

Women’s Health Survey report

This report covers the results of the Women’s Health Survey, conducted by the ALLIANCE in August 2020. This survey was commissioned as part of data gathering to inform the first phase of the Scottish Government’s Women’s Health Plan (2021-2024), and sought to better understand women’s experiences of healthcare in Scotland.

Women’s Health Event report

This report shares findings from events held in January 2021 to gather women’s lived experiences of accessing healthcare in Scotland. These events complemented a survey, and were held to inform the first phase of the Scottish Government’s Women’s Health Plan (2021-2024).

The third sector makes a significant social and economic contribution in Scotland, supporting individuals and communities across the country and employing an estimated 133,000 people, with a combined turnover of more than £9 billion every year. However, this contribution remains unrecognised and undervalued, and the financial situation facing the sector has become increasingly difficult following the COVID-19 pandemic and cost of living crisis.

As the national third sector intermediary for health and social care, the ALLIANCE advocates for fair funding for the third sector. We support the Scottish Council for Voluntary Organisations (SCVO) calls for fair funding, which include longer-term funding of three years or more; flexible, unrestricted core funding; sustainable funding that includes inflation-based uplifts; and timely notification, processing and payment of funding.

The ALLIANCE publishes reports, such as our 2023 ‘Stretched to the Limit’ report on the impacts of the cost of living crisis third sector, and consult regularly with our members to investigate the financial circumstances facing them, for example through surveys. We also ensure that the value of the third sector and the importance of fair funding are highlighted at every opportunity, through opportunities like evidence to Scottish Parliament committees in advance of the budget.

For more information on our policy activity relating to third sector funding please contact Allan Faulds, Senior Policy Officer on allan.faulds@alliance-scotland.org.uk or 0141 404 0231.

How money is raised, spent and accounted for is of fundamental importance to a healthy society that upholds everyone’s human rights. The ALLIANCE works to inform the Scottish Government’s budget setting process with the aim of ensuring that human rights as well as quality, accessibility and sustainability of public services are at the centre.

We advocate for a human rights budgeting approach to be taken at every stage of the budget, including through an approach to taxation that is geared towards meeting international human rights obligations. As part of this, we sit on the steering group of Tax Justice Scotland, a cross-organisation campaign urging a redesigned and fairer tax system.

The ALLIANCE submits consultation responses annually as part of the Scottish Parliament’s pre-budget scrutiny process. In addition, we publish and circulate amongst MSPs a briefing ahead of the budget each year. Through these mechanisms, we set out the key priorities for the ALLIANCE and our members, and the steps we think the Scottish Government should take to deliver on them.

For more information on our policy activity relating to budgeting and public finances please contact Allan Faulds, Senior Policy Officer on allan.faulds@alliance-scotland.org.uk or 0141 404 0231.

End of page.

Public finances in Scotland and the UK as a whole are in a precarious position, after years of austerity policies and the impact of the COVID-19 pandemic and the cost of living crisis. This is impacting on the ability to deliver high quality public services. The ALLIANCE works towards a Fair Finance approach to policy development and budget setting.

Our work in this area relates to the budget and public finances more generally, including advocating for the principles of human rights budgeting to be embedded throughout the process. We engage in more detail with the development of Scotland’s social security system, including the ongoing rollout of Social Security Scotland payments and future reform. We have also consistently called for fair funding for the Third Sector, that is sustainable, predictable and inclusive of annual uplifts.

The ALLIANCE publishes reports, such as our 2023 ‘Stretched to the Limit’ report on the third sector, and engages with the Scottish Government and Scottish Parliament through mechanisms including pre-budget scrutiny and consultations to advance the Fair Finance agenda. We are also on the steering group of the Tax Justice Scotland campaign.

For more information on our Fair Finance policy activity please contact Allan Faulds, Senior Policy Officer on allan.faulds@alliance-scotland.org.uk or 0141 404 0231.

End of page.

Uphold the Human Rights Act and European Convention on Human Rights

• Oppose any attempt to repeal or reduce the scope of the Human Rights Act.
• Maintain UK membership of the European Convention on and Court of Human Rights.

The UK has played a leading role in developing, advancing and embedding human rights domestically and internationally. There is much to be proud of in that history, from putting respect for human rights at the centre of European political life after the horrors of World War II, to the landmark passage of the UK’s own Human Rights Act (HRA) in 1998.

Despite this laudable record, in recent years the UK has been on a worrying trajectory in relation to human rights. Proposals to replace the Human Rights Act with a more limited Bill of Rights were deeply concerning. The ALLIANCE welcomed the abandonment of this Bill and continue to strongly oppose any revival of these plans or any attempts to otherwise repeal or reduce the scope of the Human Rights Act.

Similarly, recent rhetoric in relation to the European Court of Human Rights (ECtHR), incorrectly describing it as a “foreign court”, has been worrying. The ECtHR is an international court, charged with Europe-wide enforcement of the European Convention on Human Rights (ECHR), which the UK was instrumental in drafting. This is a highly effective model for advancing human rights, ensuring that national governments are not left as the ultimate authority on their own compliance. The UK’s membership of the ECtHR is a fundamental cornerstone of domestic human rights protections and must be maintained.

Strengthen the existing human rights framework

• Amend the Scotland Act to remove unintended restrictions on the Scottish Parliament’s ability to legislate for human rights.
• Fully incorporate international human rights treaties into domestic law.
• Ensure respect for the right to inclusive communication, particularly for people with sensory impairments.

Whilst the HRA and ECHR provide a strong framework for human rights protections, there remain opportunities to embed human rights more firmly throughout all areas of law and government. The Scottish Parliament voted unanimously for the UN Convention on the Rights of the Child (UNCRC) Incorporation Act, and there are plans to incorporate more international human rights treaties into Scots law.

However, the UNCRC Act was delayed and significantly reduced in scope by a decision of the UK Supreme Court which ruled some provisions to be outwith the Scottish Parliament’s powers. This decision has been described as “wholly unexpected” and “incoherent” by Professor Aileen McHarg, who has raised concerns about the implications on the Scottish Parliament’s ability to fully incorporate other treaties.

The ALLIANCE does not believe this is an intended feature of devolution and urge parties to commit to amending the Scotland Act to remove it. We also believe international human rights treaties (UNCRC, ICESCR, UNCPRD, ICERD and CEDAW), and the right to a healthy environment, should be incorporated and applied across the UK, underpinned by adequate ability to access justice and redress in relation to rights across all public services, whether devolved or reserved.

More must be done to ensure equal access to services and information for people with sensory impairment or loss. Communication must be respected as a human right, including through the provision of accessible information and inclusive communications.

Deliver a fair immigration system that supports recruitment and upholds the human rights of refugees and asylum seekers

• Ensure there is a supportive immigration environment for people seeking to move to the UK to work in health and social care.
• Repeal the Rwanda Bill.
• Ensure human rights protections are not removed from any groups or individuals.

The health and social care sectors across both Scotland and the UK benefit enormously from people choosing to move to the UK for work. Brexit has already negatively impacted the ability of the sector to recruit internationally, and this has been further impacted by additional restrictions imposed by the UK Government.

To attract and maintain the skilled workforce needed in health and social care, there must be a supportive immigration environment for people seeking to move to the UK to work in those sectors. This should include exempting workers from minimum income requirements, if those requirements are to exist at all, and restrictions on bringing spouses and dependents with them, in breach of their right to family life.

The Rwanda Bill, which seeks to disapply human rights protections for refugees and asylum seekers, must be repealed as a matter of urgency. This and any attempts to disapply the HRA or ECHR from any specific group or individuals are in direct contravention of the basic principles of human rights, and in breach of international law.

Human rights are universal and inalienable. Everyone’s human rights must be upheld, and rights must apply equally to everyone. Removing human rights protections from some individuals or groups risks subjecting people to severe abuses of their human rights and dignity. This sets a dangerous precedent that rights could be removed from other groups in the future.

The 2024 UK general election comes at a pivotal point, following Brexit, the COVID-19 pandemic, and the cost of living crisis, all of which have had serious but unevenly felt impacts. It presents an opportunity to restore the UK’s status as a global leader in human rights – not simply defending our existing framework but taking further action to progressively realise human rights.

It’s a moment where, learning from our experience of COVID-19, renewed investment in health, social care and reducing health inequalities can transform lives. It’s time to move on from an economic model rooted narrowly in GDP growth, towards a wellbeing economy and a rights based approach to public finances that values investments like care and social security.

Ahead of the 2024 UK general election, the Health and Social Care Alliance Scotland (the ALLIANCE) and our members call for all political parties to make the following commitments:

Human Rights

Human rights are for everyone, and we all benefit from upholding and strengthening human rights protections.

• Uphold the Human Rights Act and European Convention on Human Rights.
• Strengthen the existing human rights framework.
• Deliver a fair immigration system that supports recruitment and upholds the human rights of refugees and asylum seekers.

Health, Care and Wellbeing

Health and wellbeing in every part of the UK depends on the UK Government investing in care, whilst acting on wider public health and tackling inequalities.

• Invest in health and social care.
• Reduce health inequalities.
• Address gambling harms.

Financial Fairness

Fairness must be at the heart of public finances and the economy, with investment in the services people rely on, recognition for the value of care, and a human rights based approach to social security.

• Reimagine investment and the economy.
• Ensure social security and work deliver dignity for disabled people.
• Repair the broken social security system.
• Deliver a fair, renewable deal on energy.

You can read our more detailed asks on the dedicated page for each chapter, or by downloading the full ALLIANCE 2024 General Election manifesto via the links below, including in Easy Read format. You can also find a BSL, voiceover and subtitle video summary of the manifesto on the ALLIANCE YouTube channel here.

The Scottish Sensory Hub has carried out a range of research projects and consultations, primarily focusing on lived experience. Details of some of our recent publications are listed below.

More than Words: the provision of inclusive communication by public bodies in Scotland

Using Freedom of Information requests and interviews, the ALLIANCE Scottish Sensory Hub researched the current provision and understanding of inclusive communication across a range of public bodies in Scotland. Our analysis focuses on public bodies’ data collection practices, provision of inclusive communication support, complaints about support, and staff training.  

We highlight and provide examples of good practice and areas of learning, as well as areas for improvement. We found that: 

• Most Scottish public bodies (63%) do not track if or how they provide communication support.  

• Most Scottish public bodies (57%) do not track how many communication support requests are made to them. “I knew there would be some demand for Easy Read […] but I’ve been surprised by how big the demand has been.” (Local authority)  

• Most public bodies (64%) offer some form of inclusive communication training. However, training content is variable. 

• Where data is collected on training uptake, most staff don’t complete the offered inclusive communication training. Training uptake is often only 1-2% of employees. Without proper training, it’s difficult for people to support communication for all. 

We want to see statutory duties on inclusive communication to be placed on public bodies, including provision, data collection and staff training.  

Without legal protection for people’s right to inclusive communication, Scotland is unlikely to see systemic change. Real and meaningful reform is needed, to counter existing inequalities and enable people to enjoy their human rights and be a full part of civic society.   

A BSL video of the report summary, with captions and voiceover, is available here.

The full report and accompanying English and Easy Read summaries are available here.

Dementia assessments for people with Deafness, Deafblindness or Visual Impairment

The ALLIANCE Scottish Sensory Hub has produced a report for the Scottish Parliament’s Cross-party Group on Deafness on dementia assessments and sensory care.

Identifying Deafness, Deafblindness or Visual Impairment before people are assessment for dementia is important, because it enables tailored communication which meets people’s needs. This fosters informed decision making and independence.  It also enables GPs and other health and medical professionals to select different memory/dementia assessment tools – rather than using standard tools that require people to see and hear. Not identifying or considering Deafness, Deafblindness or Visual Impairment means that assessments and support planning are unlikely to be appropriately tailored to the needs and rights of individuals. 

The major findings from this research are that there are large variations in practice in the assessment of dementia for people with Deafness, Deafblindness and Visual Impairment, including BSL users. There is also a lack of integrated care pathways between dementia assessments performed by GPs and other health and medical professionals, and sensory assessments from eye and hearing care services. 

Based on the research findings, the ALLIANCE has published a report for the Cross-party Group on Deafness containing 26 recommendations to improve care pathways and support for people with dementia who also experience Deafness, Deafblindness or Visual Impairment, including BSL users. These recommendations will inform future work by the sensory care and dementia working group on developing the first framework of sensory care standards for Scotland.

A BSL video of the report summary, with captions, is available here.

The full report and accompanying summary are available here.

Analysis of Local BSL Plans 2024-2030

The ALLIANCE Scottish Sensory Hub undertook independent analysis of local British Sign Language (BSL) plans for 2024-2030. The findings and recommendations are available in a report.

The BSL (Scotland) Act 2015 is the legislation which recognises both visual and tactile forms of BSL. The Act requires the Scottish Government to publish a national plan every six years, setting out their strategy to “make Scotland the best place in the world for BSL signers to live, work, visit and learn”. The Act names a range of “listed authorities” who must produce their own local BSL Plans.

The publication of the new BSL National Plan 2023-2029 and the second round of BSL local plans represents a new milestone in promoting and supporting the human rights of BSL users in Scotland. The ALLIANCE Scottish Sensory Hub have analysed these new BSL local plans to assess compliance with the law and highlight examples of good practice and areas of learning so far.

The report contains an overview of all published local BSL plans until August 2024, including the number of plans compliant with the legislation, the inclusion of Deafblindness and tactile BSL within plans, and the availability of information on the consultation process. The reports also features an analysis of the accessibility of plans (written and in BSL), and the content for regional Health Boards and local authorities on the 10 priority areas found in the BSL National Plan 2023-2029. The report includes reflections and recommendations for ensuring that BSL users can participate fully and equally in society and enjoy their human rights.

A BSL video of the report summary, with captions, is available here.

The full report and accompanying summary are available here.

Accessible information on Self-directed Support – Lived Experience Research

The ALLIANCE Scottish Sensory Hub completed a consultation on behalf of the Scottish Government to inform the implementation of the Self-directed Support (SDS) Improvement Plan 2023-27. One key activity in the SDS Improvement Plan is to ensure the provision of accessible information and communication around SDS. This includes communication and support planning and promotion and signposting of appropriate tools and language services. From December 2023 to February 2024, the Scottish Sensory Hub carried out a small-scale mixed methods research project into people’s experiences of accessible information around SDS and social care (a national online survey, focus groups, and one-to-one interviews).

There was widespread agreement among participants that SDS is not publicised enough for people who are Deaf, Deafblind, or who have Visual Impairments – and more needs to be done on introducing SDS in accessible formats. People who are Deaf, Deafblind or who have Visual Impairments highlighted a range of difficulties in receiving information that was accessible to them when they needed it. They outlined a lack of awareness of how to provide accessible information, particularly from professionals, such as social care workers, social workers, occupational therapists, as well as GPs, audiologists and opticians. While provision of BSL interpreters from local authorities and Health and Social Care Partnerships (HSCPs) was welcome, people also highlighted a lack of resources, resulting in delays to assessments and support. Respondents recommended more sensory awareness training for healthcare professionals and social workers, including signposting to accessible information.

A BSL video of the report summary, with captions and voiceover, is available here.

The full report and accompanying summary are available here.

See Hear Strategy – National Lived Experience Consultation

The ALLIANCE Scottish Sensory Hub completed a consultation on behalf of the Scottish Government to inform the new See Hear Strategy. The See Hear Strategy is the Scottish Government and COSLA strategy to support children and adults are Deaf, Deafblind, or who have Visual Impairments. The previous strategy was published in 2014. After 10 years, Scottish Government developed a new version.

From September to November 2023, the Scottish Sensory Hub carried out a mixed methods research project with adults (a national online survey and focus groups). The national online survey and focus groups covered what topics the new See Hear Strategy (SHS) should contain. Participants highlighted the need for the Strategy to prioritise human rights and to involve people with lived experience via a co-design approach. They also outlined examples of good practice in terms of support and services for people with sensory impairment, as well as a range of areas where improvement was needed.

The full report and accompanying summary are available here.

See Hear Strategy – Lived Experience Consultation with Ethnic Minority People

The ALLIANCE Scottish Sensory Hub was also asked to carry out a consultation with ethnic minority people on behalf of the Scottish Government to inform the new See Hear Strategy.

Participants highlighted a lack of inclusive communication practices and provided examples of barriers experienced in accessing care and support. People discussed the varied impact of stigma and discrimination, particularly across the intersections of age, disability and ethnicity. Recommendations to reduce cultural stigma and discrimination included mandatory sensory and cultural awareness training for public sector staff, as well as interventions to inform people from ethnic minorities about their legal rights, such as the Equality Act 2010. Participants spoke in detail about the need for ethnic minority people to be meaningfully involved in co-production of solutions, with effective feedback loops and opportunities for ongoing influence on decision-making – not simply consultation.

The full report is available here.

Examining the Efficacy of Lipreading Classes in Scotland

In 2023 the ALLIANCE Scottish Sensory Hub carried out a review for the Scottish Government of the efficacy of lipreading classes as an adult aural rehabilitation approach. Lipreading classes are a form of aural rehabilitation for adults living with deafness. The World Health Organisation (WHO) states that healthcare systems should prioritise rehabilitation, and the Scottish Government aims to alleviate loneliness and isolation, which is particularly relevant for aural rehabilitation because unsupported deafness/poor access to inclusive communication is an established risk factor for both.

The main findings of the review are that lipreading classes are beneficial in terms of improving feelings of well-being and increasing communication confidence. The report highlights several considerations for future service planning

The full report is available here.

Response to the Consultation on the BSL National Plan (Scotland)

In September 2023 the ALLIANCE responded to the Scottish Government consultation on the British Sign Language (BSL) National Plan 2023-2029. Our response represented a range of BSL and tactile BSL users, findings from recent engagement exercises, and feedback from staff involved in these engagements. Key points of our response include:

• Data gathering is transformative when it is applied to progress human rights and social justice. For this reason, it is crucial BSL data includes disaggregated data to reveal inequalities which may be concealed within aggregated data.
• All workplaces need to be more sensory aware and consider the benefits of as well as a need to keep people with age-related experiences of sensory loss in employment longer.
• Skills development should include a more rounded understanding of communication and language barriers with a view towards developing a consistent set of national symbols to add richness of comprehension for all. Workplaces need to cater for all employees routinely, rather than relying on requests for reasonable adjustments.
• It is critical to work with the General Teaching Council for Scotland (GTCS) and other professional groups to ensure lived experience BSL users obtain qualified teacher and other relevant professional status.
• Equal opportunities for people whose first or preferred language is BSL is necessary to secure employment in the field of arts and media, improving representation. Plans need to support both the growth and support of BSL in a context of integration with others. To harness the culture and creativity of all BSL users, there should be concerted efforts to expose inequalities and identify power hierarchies wherever these exist, to ensure no one is discriminated against or prevented from participating.

The full response is available here.

Mapping Sensory Loss Awareness Training Across Scotland

Scotland’s national See Hear Strategy identifies sensory loss awareness training as a potential lever for change because it can help staff better support people with lived experience. To support the development of an informed national approach to sensory loss awareness training, the ALLIANCE Scottish Sensory Hub carried out research to identify the different elements of existing provision across the country. An online survey aimed at organisations that provide sensory loss awareness training was live from May to June 2023. 

In general, there was no single agreed definition of “sensory awareness training”, and therefore what constitutes such training is open to interpretation. Some training providers are accredited, others are not, and there is inconsistent involvement of people with lived experience in training design and delivery. Trainers themselves hold a range of skills, qualifications and experiences, and not all courses involve pre- and post-training evaluation. All providers who responded to the survey provide in-person training, and some offer hybrid options. One of the most common areas across survey respondents was in the core training components.

The research and considerations paper is available here.

Sensory Care in Care Homes: Understanding the Why

Sensory care can be defined as any type of care related to the senses which is necessary for a person’s communication, access to information and mobility. These themes are human rights as well as being critical enablers for accessing other rights.

In June 2023, the ALLIANCE Scottish Sensory Hub organised a roundtable to explore the “why” of sensory care in care homes – why does this type of care matter in care homes for older people? Understanding the why helps us better navigate the “how”, and provides the motivation for us to act. We called for the embedding of a human rights-based approach to sensory care, highlighting the need to respect people’s right to information, right to communication, and right to language.

Resources from the session, including a flash report, presentation notes, and video, are available here.

National Review of Audiology Services – Engagement Insights

In partnership with colleagues across the ALLIANCE, members of the Scottish Sensory Hub ran a series of engagement events to feed into the Independent Review of Audiology Services in Scotland. This lived experience engagement informed the Review, and the ALLIANCE were subsequently invited to be part of the Audiology Implementation Delivery Group.

Findings from the ALLIANCE engagement activity are available in a report here, and a BSL video is available here.