Rare Revolution Magazine

RARE Revolution is a FREE, quarterly digital magazine for the Rare disease community.

It seeks to give RARE patients and the charities that represent them a voice to be heard on their terms, while providing useful tips, guidance, features and current news. RARE Revolution Magazine is published by NRG Collective ( A non profit organisation). As a parent company NRG Collective also run patient engagement activities within the pharmaceutical and biotech industries ensuring that patients are given a voice when it comes to patient registries and clinical trials. We also undertake awareness raising for rare disease charities and unpaid carers. In addition we run RARE Youth Revolution and the Illuminating RARE Talent Internship programme giving opportunity for meaningful work experience to young people living with a rare disease. Rare Youth Revolution acts as a community to elevate the voice of young people aged 12-28 living with a RARE disease and finding out what’s most important to them.