Time to talk about transitions
- Written by: — Associate Director, Children and Young People and James Cox, Consultant, The ALLIANCE
- Published: 24th May 2017

It's time to take action to improve the experiences of disabled young people through their transition to adult services and adult years.
Ronnie and James Cox, Consultant, ALLIANCE Transitions Study, tell us about today’s launch (24 May 2017) of the ALLIANCE’s new report “Experiences of Transitions to Adult Years and Adult Services” (to view please see resource below).
The basis of the study is the lived experience of young people and their families. The young people or young adults in this study are in the age range 15-24, with one aged 30. Families and individuals have come forward from throughout the study area of East Lothian, Midlothian, West Lothian, Scottish Borders and the City of Edinburgh. Twenty-nine young people and their families participated. We are indebted to these families, whose active engagement has been critical to the production of this report.
The aim of the study is to inform improvements by outlining themes and suggestions arising from people’s experiences. Conclusions and recommendations are intended to support practitioners and managers in their practices, services and strategic developments.
The study explores the extent to which key components of ‘Getting it Right for Every Child’ (GIRFEC) are evident or are helpful to families. GIRFEC is underpinned by the United Nations Convention on the Rights of the Child. It aims to improve the wellbeing of Scotland’s children and young people by encouraging statutory and third sector partners to coordinate their efforts with families. A key aim is to ensure children and young people get the right support at the right time if and when they need it.
In his Foreword to the report, Minister for Childcare and Early Years, Mark McDonald MSP points out that;
“…transition from childhood to adulthood is one of the most daunting phases in anyone’s life; a period of huge change and adjustment. Crucially if we want to build a truly fair and inclusive Scotland, we must make sure that all young people are supported during this time of transition to ensure they reach their potential, irrespective of personal circumstance.”
The ALLIANCE agrees fully that supporting disabled children, young people and their families through this period of profound change is a matter of fairness and inclusion. Offering and sustaining the right support to young people and their families throughout this process is a matter of ensuring social justice and upholding people’s rights.
The resilience, creativity and tenacity of families is the bright light in this report as they, with their children and young people, strive over the years to ensure disabled young people navigate change and reach their potential in adulthood. The report sets out examples of great practice and support which has assisted young people and families through this change. It also highlights tensions, frustrations and dilemmas which need to be resolved.
This is a report about hope. We know that there are practical steps that can be taken by statutory services and third sector partners, working with families, to make improvements to the support offered. The recommendations set out in this report are based on what families and practitioners have told us about what works well and about how improvements can be made. We hope that you will join us in our drive to ensure these recommendations are put into practice across Scotland.
End of page.
You may also like:
Chloe Craig reflects on how we have helped connect Scotland’s lived experience voice to conversations happening beyond our borders.
Continue readingDr Irene Oldfather reflects on two decades of growth, collaboration, and person centred impact across Scotland and beyond.
Continue readingDisabled people are some of those who suffer most in crises but are ignored in planning. Our 6-step model builds justice throughout.
Continue readingMaisie Peebles shares her experience working with Aberdeenshire Public Health Team on a ‘digital conversations’ project.
Continue readingSara Redmond, ALLIANCE Chief Officer, on why the Scottish Government and parties must seize the opportunity for change.
Continue readingDirector of the Links programme, Roseann, discusses why we need to focus on person centred care, and why the programme is central to this.
Continue readingReflections on the ALLIANCE Integration in Action: Inclusive Leadership event.
Continue readingWhat does The Scottish Report tell us about how we're supporting people with inflammatory mediated autoimmune conditions (IMIDs)?
Continue readingAvril McLean from Action from ME shares new resources designed to support professionals understand the impact of ME on people's lives.
Continue readingMandy Wright from Home Energy Scotland shares how partnerships positively impact their work.
Continue readingToo many young people are falling through the mental health support gap. How do we fix the "Missing Middle"?
Continue readingJoe McCready from Carers UK shares how important their annual survey is, and why it is invaluable for unpaid carers to have their say.
Continue readingColette reflects on the last 12 years of the Community Links Worker programme, as well as her own experience of being a CLW.
Continue readingWith the current World Cup, gambling presents an even higher risk. How can we prevent young people from getting tangled in this web?
Continue readingDr Anthony McMahon reflects on the importance of the Community Links Worker within his GP surgery - and why it makes all the difference.
Continue readingAs part of our 20 year anniversary, the Integration Team highlight the importance of our Connected Communities series.
Continue readingTo mark ‘What matters to you?’ Day, The ALLIANCE's Barbara Flynn considers the impact of Tommy Whitelaw’s talks for nurses and midwives.
Continue readingThe ALLIANCE’s Humans of Scotland project works to challenge stigma.
Continue readingIn her latest TFN column, our Chief Officer Sara Redmond reflects on post election feelings and Scotland’s future.
Continue readingALLIANCE Chief Officer, Sara Redmond, reflects on our Annual Conference 2026 and how we're turning hope into action.
Continue readingALLIANCE member, Catherine, shares the importance of initiatives like 'What Matters To You?' Day in promoting person centred care.
Continue readingLearn about how the ALLIANCE has championed joined-up, person centred care.
Continue readingDementia Action Week highlighted some great resources and support for people living with dementia and their family, friends, and carers.
Continue readingSteven Mair gives us an insight into his role as a gamer at the Glasgow Children’s Hospital Charity.
Continue readingSince 2009, ALISS has helped people find local health and wellbeing support. Any group, big or small, can add their information.
Continue reading