Not as well as they should, if the ALLIANCE’s research is anything to go by.

It seems like a while ago now, but earlier this year we carried out a small enquiry into people’s awareness, understanding and experiences of Self-directed Support (SDS). The results were published in June (‘Personal Experiences of Self-directed Support’), but are still yielding pertinent and revealing data. We’re in the process of sifting out information related to specific groups, and the first in the series is our briefing on SDS and Women (Women’s Experiences of SDS).

By looking in greater depth at women’s responses to our research, the ALLIANCE aims to gain a better understanding of how women engage with and experience the process. It is our contribution to what we hope will be a growing body of evidence to help improve SDS policy and practice.  One of our main concerns is that there is a gap in robust, national qualitative data on SDS, including women’s experiences.

Our short survey and focused interviews show there’s a very mixed picture for women, depending on who you are and what you use SDS for. It is very encouraging that women’s satisfaction with social care increased by around 16 per cent following the introduction of SDS. However, half of our female respondents said they did not feel they have enough support to meet their requirements and waiting times for SDS packages are unacceptably high.

The ALLIANCE is concerned that SDS is not being implemented according to its rights-based values and principles and will therefore not achieve transformational change in social care culture and services or help improve people’s lives. Specific equalities and traditionally marginalised groups – in this case women – are at great risk of being overlooked when they require targeted and tailored approaches.

As Emma Trottier of Engender, who kindly wrote the Forward to our briefing paper, notes: “Health and social care services, and decisions over their management, have a major impact on women, and ignoring women’s unique needs and realities inhibits social policies from being realised for half of Scotland’s population.”

We’ve learned a lot from carrying out this research, which we hope to continue to improve and repeat as a way to monitor how people’s experiences of SDS – as well as the facts and figures – improve over time. Keep an eye out for more targeted briefings, including older people and unpaid carers, which should be published soon.


End of page.

You may also like:

Written by: Sara Redmond, Chief Officer Published: 25/09/2025

Sara discusses how truly listening and acting on what we hear is the only way that true and real change can be made.

Continue reading
Written by: Dr Gail Cunningham, Project Manager and Lead Facilitator, Long Term Conditions Hebrides (LTCH) Published: 14/08/2025

Gail Cunningham, a retired GP and Project Manager at LTCH tells us just how much self management has changed her life.

Continue reading
Written by: Sara Redmond, Chief Officer Published: 29/07/2025

ALLIANCE Chief Officer, Sara Redmond, shares her thoughts on leading courageously in creating long term societal change.

Continue reading
Written by: Elaine Mitchell-McCutcheon, Improvement Collaborative Senior Policy Manager, Getting It Right For Everyone, Scottish Government, Scottish Government Published: 23/07/2025

New approach to services puts person at centre of care.

Continue reading
Written by: Danielle Farrel, Managing Director, Your Options Understood (Y.O.U) Published: 21/07/2025

ALLIANCE Member Danielle tells us what she needs to lead as part of our self management awareness raising campaign for 2025.

Continue reading
Written by: Caroline Brocklehurst, Patient Representative & Peer Support Lead Published: 30/06/2025

Self Management Network Scotland member Caroline Brocklehurst tells us what she needs to take the lead in managing her health.

Continue reading
Written by: Sophie Steenbakkers, ALISS Engagement and Communications Officer Published: 17/04/2025

ALISS is supporting GCHSCP's work to help people live independent lives by connecting them to support in their local community.

Continue reading
Written by: Karen Fullerton-Chalmers, Prevention & Community Engagement Manager, Action Against Stalking Published: 08/04/2025

National Stalking Awareness Week 2025, from 21-25 April, will focus on healthcare professionals spotting the signs of stalking.

Continue reading
Back to all opinions