As part of the Self Management Making Waves Series, find out how Diabetes Scotland have made an impact on self management in Scotland.
As shortlisted nominee of the 2018 Self Management Resource of the Year Award, we want to share with you the learning and success from Diabetes Scotland in supporting self management in Scotland.
Diabetes is a complex condition and most people living with diabetes only spend around 3 hours a year with their doctor, nurse or consultant. For the other 8,757 hours they much manage their diabetes themselves. The early months following diagnosis are frequently described as horrendous, stressful, confusing and difficult. Diabetes affects all aspects of a person’s life: at home with family, mealtimes, work, exercise and socialising. It can make it hard to live with spontaneity. Lack of understanding about diabetes in the health service, workplace, school and society generally can lead to people feeling isolated, misunderstood and stigmatised. Access to education /training and information in formats that are appropriate and easy to understand are essential, for all people living with diabetes.
Whilst there are national guidelines and frameworks in place in Scotland with regard to diabetes education, many of those newly diagnosed with Type2 diabetes do not receive the diabetes education they need. In an effort to address some of the barriers and unmet needs, Diabetes Scotland, with an initial grant from Scottish Diabetes Group, co-produced the Type2 Newly Diagnosed Resource pack.
In developing the resource, they followed the five principles of Community Development and Learning and recognised that people learn in different ways. Considerable time was spent undertaking research with healthcare professionals and people living with diabetes.
The resource was designed for people newly diagnosed with type2 diabetes and health care professionals to start a ‘conversation’ about diabetes. Diabetes Scotland examined up to date guidance and recommendations relating to diabetes and lifestyle management to ensure the resource provided clear, consistent, accurate and relevant information. Based on feedback from people living with the conditions, the resource is spilt into sections which can be read either sequentially or as a ‘stand-alone’ section, dependent on the individual’s needs.
The information is presented in both pictorial and simple text for ease of use. Additionally, there is the facility to record results, complete checklists, make notes, record questions to ask at the next consultation/appointment and signposts to additional sources of advice such as MyDiabetesMyWay and other forums. It is a resource designed for repeated use and to support longer term self management.
The resource is currently available in hard paper copy and downloadable web based PDF formats and we are exploring the feasibility of developing a Mobile Application (APP).
The Newly diagnosed Type2 pack was co-produced to meet the unmet education and information needs of those newly diagnosed with Type2 Diabetes in Scotland, to give both HCP and people living with diabetes the tools and knowledge to understand diabetes, facilitate person centred care and promote self-management.
Since February 2018 we have disseminated over 2000 copies of the resource. It is being utilised in both primary and secondary diabetes services and is available to download from the NHS Scotland mydiabetesmyway and Diabetes Scotland websites.
Whilst the resource was developed for those newly diagnosed within the last 3 – 9th months. Feedback from people who have been living longer with diabetes have indicated the pack ‘filled in the gaps’, ‘made things clearer’, ‘helped them understand the condition and what to do next’. Highlighting that is was relevant for all stages of the diabetes journey, not just after initial diagnosis, and should made available to everyone living with type2 Diabetes.
There has also be requests for a similar resource for adults with Type1.