Have your say: The impact of financial insecurity in rural areas
- Area of Work: Policy and Research
- Type: News Item
- Published: 7th June 2024
Share your experience of living with or caring for someone with advanced illness and financial insecurity, particularly in rural areas.
Over 90,000 people in the UK die in poverty. However, little attention has been paid to the lived experience of people living with advanced illness and their families who are living with financial insecurity at the end of life.
Marie Curie have funded a study to explore the lived experiences of people living with advanced illness (including the last year of life) and family carers who are experiencing financial insecurity, particularly in rural, coastal and island communities. They are looking for people to take part in a research project exploring what it is like to live with serious advanced illness when you are also struggling to make ends meet.
Researchers at the University of Glasgow are conducting one-off interviews with people with serious advanced illness/carers of people with serious advanced illness. Interviews can be done in person, by telephone or by video call. Interviews are open to adults over the age of 18, and participants will receive a £25 high street voucher for their time.
The study seeks to identify how people who are struggling to make ends meet connect with and mobilise supportive resources to support their well-being. This research also aims to provide recommendations for improving the relevance and accessibility of services and resources for people struggling financially when nearing the end of life.
Who can take part
To take part in this study, you must meet the follow criteria:
- Living with an advanced illness or is a carer for/has cared for someone with an advanced illness. For example, Cancer, Advanced Heart Illness, Motor Neurone Illness, Chronic Obstructive Pulmonary Illness (COPD), neurological conditions like Parkinson’s Illness or Multiple Sclerosis, Dementia, or end-stage organ failure.
- Struggling to make ends meet and/or is in receipt of means-tested benefits.
- Lives in a rural or island community. The Scottish Government defines an area as rural if it is more than a 30-minute drive from a settlement with a population of 10,000 or more.
- Over the age of 18 and able to give informed consent.
- Willing to discuss the project further with a researcher.
Recruitment for the first phase study will take place until 30 September 2024.
If you would like to take part of have any questions, get in touch Sam.Quinn@Glasgow.ac.uk
End of page.
You may also like:
Read a statement from our Chief Officer, Sara Redmond, on the recent social security announcement from the UK government.
Continue readingCould you help shape the future of Human Rights in Scotland? Apply to join the SNAP2 Leadership Panel
Continue readingThe UN ICESCR Committee has issued its recommendations and several reflect points made by the ALLIANCE and our members.
Continue readingCarers Scotland launches their State of Caring in Scotland 2024 research report.
Continue readingThe ALLIANCE responds to the Equality, Human Rights, and Civil Justice Committee's inquiry into the the Public Sector Equality Duty.
Continue readingOur response calls for a human rights based approach to outcomes, and to consider how to strengthen the SHRC.
Continue readingA Scotland that Cares campaign calls on the Scottish Government to set a dedicated National Outcome on Care now.
Continue readingPublic Health Scotland have published a briefing on transport poverty and health inequalities.
Continue readingThe Scottish Human Rights Commission (SHRC) has published a report on the state of economic, social and cultural rights in Scotland.
Continue readingThe ALLIANCE welcomes the proposed strategy, though a Human Rights Bill is necessary for full effect.
Continue readingObesity Action Scotland wants to stop unhealthy food sponsorship at Scottish sports events including the 2026 Glasgow Commonwealth Games.
Continue readingResidents of Leith’s famous Banana Flats (Cables Wynd House) have launched their human rights monitoring report.
Continue readingThe Scottish Human Rights Commission (SHRC) report finds troubling failures in progress from institutionalisation to independent living.
Continue readingThe updated SPSO Principles demonstrate a positive shift towards putting people and their human rights at the centre of complaints handling.
Continue readingThe Mental Welfare Commission calls for urgent changes so people with learning disability and complex needs can leave hospital and flourish.
Continue readingMinister announces parts of the National Care Service Bill will be dropped due to a lack of compromise and support.
Continue readingAre you aged 55+, living in the UK, and interested in supporting new research?
Continue readingWe have submitted a parallel report to the UN Committee on Economic, Social and Cultural Rights for its examination of rights in the UK.
Continue readingThe ALLIANCE welcome the aims of widening access to palliative care, but actions must be underpinned by resources and accountability.
Continue readingAutistic Knowledge Development and National Autistic Society Scotland celebrate the success of the Embrace Autism programme.
Continue readingThe ALLIANCE wants to hear from you if you have experienced barriers to accessing Self-Directed Support.
Continue readingThe First Minister has reiterated his commitment to the continuation of Contact Scotland BSL.
Continue readingThe Policy and Public Affairs programme influenced government policy in many areas over 2024.
Continue readingRaising awareness of key areas of women’s health, challenging myths and stigma through positive dialogue, and lived experience forums.
Continue readingWhilst the draft Covenant is a positive start, it is unclear how it's aims will be realised in practice.
Continue reading