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New ME/CFS Interim Delivery Plan from Department of Health and Social Care (DHSC)

  • Area of Work: The ALLIANCE
  • Type: News Item
  • Published: 23rd August 2023
5 people sat around a desk with laptops and writing material having a meeting.

Department of Health and Social Care (DHSC) are seeking views from across the UK of people who have used ME/CFS services.

The cross-government interim delivery plan on ME/CFS has been developed in close consultation with the ME/CFS community and other key stakeholders responsible for service delivery. By bringing together many key organisations at national level and people with personal experience, DHSC have a unique opportunity to tackle the challenges facing those living with ME/CFS and their families and carers.

The interim delivery plan was developed around 3 key themes: research, attitudes and education, and living with ME/CFS. The latter theme was then further sub-divided into topics covering children and young people, social care, health, welfare, employment and quality of life. Working groups were formed for each theme and workshops focusing on the ‘Living with ME/CFS’ topics were held to gather more evidence and views.  

Consultation

This consultation seeks views on an interim set of actions to improve the experiences and outcomes of people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) that have been developed in collaboration with people living with, working or interested in the condition. It will inform the development of a final cross-government delivery plan on ME/CFS.

In your response to questions in the consultation, please do not include any information that could identify you or somebody else. For example, do not include anyone’s name, age, job title or email address where it is not asked for.

See full details of this consultation, including all the questions you’ll be asked in this survey.

The survey closes at 11.59pm on 4 October 2023.

The survey is open to people aged 13 and over, who live in the UK.

To share this survey with others, please right click to copy this direct link address and paste it. Do not share the page to the survey once you’ve started it. If you navigate away from the survey, it should continue from where you left it, if you reopen the link in the same browser with the link from where you left it.

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