New Usher Syndrome Helpline
- Area of Work: Scottish Sensory Hub
- Type: News Item
- Published: 27th February 2026
National Usher Syndrome Helpline launched to provide one-stop support
Usher Syndrome is the largest genetic cause of Deafblindness.
Deafblind Scotland are delighted to announce that they have launched a completely new national helpline service.
The Usher Syndrome Helpline is run jointly with Deafblind UK allowing UK-wide coverage.
This is a first port of call for any enquiries from people living with Usher Syndrome, as well as families and carers. You can call the helpline with questions, requests for support, or if you just need someone to talk to.
To access the Helpline:
- Call 01733 973 500
- Text: 07800 008 088
- Use Contact Scotland BSL
The Helpline is free to call and open Monday to Friday, 10am – 1pm (excluding bank holidays)
For more information, visit Deafblind Scotland’s website at this link.
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