Charlie McMillan of SCLD asks how do we turn an increasingly thread-bare safety net into a vibrant springboard?
When Derek Feeley launched the Independent Review of Adult Social Care, he said that the review group had adopted something of an informal mantra: “Social care is not a safety net, it is a springboard.”
This was gratifying to the member of the Expert Group who said this and to the many other SCLD stakeholders who took part in the Review. Everyone who was involved was clear that the status quo is not working. All the evidence we have reinforces this. We believe this simple statement encapsulated so much of the challenge we all face as we turn to consider what a national care service might look like. How do we turn an increasingly thread-bare safety net into a vibrant springboard?
There was also a clear sense amongst people with learning disabilities and their supporters that the Review was a process that had truly listened to their voices and had recognised that their human rights had to be at the very heart of whatever came next.
Now, however, many of our stakeholders are concerned by the widened focus of the initial consultation for the proposed National Care Service and on the challenging timescales for response. Feeley himself was clear that people with learning disabilities needed to be involved in the development of the National Care Service – timescales that allow this to happen are therefore essential.
People are also concerned that the current consultation risks diluting the transformative spirit of the Feeley Review with a focus on creating bureaucratic systems where those who require the support most remain invisible.
If we believe social care should be based on the realisation of fundamental human rights, we must bear in mind the words of Eleanor Roosevelt who said that human rights must begin in the “small places, close to home.” For us, this means a system of social care which addresses the problems faced by individuals, in the communities they live, before they arise. We have heard so many accounts of where this does not happen, both before and during the pandemic.
It is also important to remember that for many people with learning disabilities and their family carers, the pandemic is far from over. Support is still to return to pre-pandemic levels, many respite and day services remain closed, health care and education remain inaccessible, transitions from education are patchy at best, and employment for people with learning disabilities is the exception rather than the rule. Added to this is the fact that entitlement to social care currently does not follow the person should they move area and, at its worst, lacks even the most basic flexibility in supporting people to achieve their future goals and aspirations.
SCLD believes that more than being a failure of policy and practice these, and the other systemic barriers that people with learning disabilities experience, are failures of culture, of values, attitudes, as well as inclusion and belonging. We believe we do not just need a new system of social care support, but a whole new story and a means to make that story a reality for people.
We know that many people continue to think that those supported by social care are static recipients in institutional settings, rather than individuals with talents and strengths which they can use to contribute to the social fabric of our communities when properly supported. Where people with learning disabilities do live in our communities, they tend to live their life on the margins, segregated and excluded by the very communities they long to belong to.
Resolving these issues must be at the core of the establishment of the National Care Service; it must be no less visionary than the thinking that established the National Health Service. It must enable transformative change to the lives of people with learning disabilities, and many more besides.
The discussion about the vision, strategy, form, and function of the National Care Service must be about more than the minutiae of structure and process. It must be about delivering real and lasting cultural change for the country and significant improvements to the quality of life for every person who relies on it.
Therefore, SCLD would recommend the following as building blocks to the design and delivery process:
- Meaningful engagement of people with learning disabilities at every step on the way including in the development of legislation.
- Embedding an equalities and human rights approach to the provision of support and care which is EQIA (Equality Impact Assessment) assessed and focuses on providing flexible support which empowers individuals.
- A clear and consistent approach to the regulation of care and support including a fully accessible mechanisms of complaint for people with learning disabilities.
In short, the National Care Service must be truly human rights focused and person centred. It must be designed and resourced so that it can function as a springboard for all our citizens to live their best lives – in the heart of their ‘small places’ across Scotland.