The ALLIANCE programme on woman’s experience of transvaginal mesh reviews activity in 20202
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 18th January 2021
We engaged with women affected by transvaginal mesh complications to support the review process and Fund.
In 2019, the Scottish Government Short Life Working Group on Transvaginal Mesh Complications (this link will take you away from our website) and the Healthcare Improvement Scotland Transvaginal Mesh Implant Oversight Group (this link will take you away from our website) invited the ALLIANCE to undertake independent engagement work to give a voice to those with lived experience of complications following transvaginal mesh surgery.
All findings were included in the ‘My Life, My Experience’ report and highlighted the diverse experiences of 46 women from across Scotland. We found that for all the women that contributed, the complications were significant and for many life changing. The women affected also shared their views on how to improve care following mesh procedures. The ALLIANCE is grateful to have been trusted by all women to share their experiences and views.
The ALLIANCE was then invited to work with women with lived experience to co-design the case note review process. The case note review intended to give women the opportunity to set out their concerns about treatment and then examine this with clinicians alongside their notes. These views were outlined and put forward to the Chief Medical Officer for Scotland in 2020.
This extensive engagement work contributed to the launch of the £1 million Mesh Injured Women’s Fund. This was a significant milestone for women affected by transvaginal mesh complications (this link takes you away from our website). This fund was set up to allow women to have greater access to practical or emotional support as they see most appropriate. The ALLIANCE is pleased to have supported this piece of work by holding co-design focus group events and directly involving and asking a sample of women how they felt the fund should be allocated.
In 2021, the ALLIANCE is set to deliver two engagement sessions on what a new national service could look like through which we will continue to ensure a strong voice for those with lived experience. These sessions will be posted on the ALLIANCE events page.
Reports of other ALLIANCE programme activities during 2020 can be found in our News section.
End of page.
You may also like:
#TryAToolTuesday raises awareness of free and trusted apps and resources that help people improve and manage their health and wellbeing.
Continue readingImproved voting accessibility for people with Visual Impairment
Continue readingReport calls on the UK Government to ensure Access to Work is fully accessible
Continue readingHelp shape the new guidelines
Continue readingHelp future technology become more accessible
Continue readingAn update on our ongoing engagement with BT
Continue readingFindings show a need for quicker diagnosis and improved referrals to self management support
Continue readingThis new resource from the Social Care Institute for Excellence brings together research, data, and practice evidence.
Continue readingThe Patient Information Forum has released a report that shares the findings of it's latest survey on health literacy and digital inclusion.
Continue readingThe ALLIANCE has co-signed Samaritans Scotland's call for change.
Continue readingThe ALLIANCE has produced a report for the Scottish Parliament's Cross-party Group on Deafness.
Continue readingJoin Tommy Whitelaw for a workshop reflecting on his experience for caring for his mum and the importance of asking 'What matters to you?'.
Continue readingIndependent Review of Scotland's Legislative Framework for Children's Care Survey now open
Continue readingRead the Scotland Reducing Gambling Harm programme's event report which explores what makes lived experience platforms successful.
Continue readingAn online library of stories exploring the question, ‘What matters to you?’
Continue readingThe ALLIANCE are seeking views on the Scottish Government's rights to breaks and timescales for support plans for unpaid carers consultation
Continue readingProfessionals and members of the public are being asked to take part.
Continue readingDigital Team are launching an Online Digital Learning Series, first event is on Tuesday 12th May 10.30-12noon.
Continue readingTake part in participant-led rail journey research
Continue readingThe committee wants greater involvement from lived experience to strengthen their work.
Continue readingLived experience and peer support driving mental health transformation in Scotland.
Continue readingThe new platform ‘MyCare.scot’ is being led by the Scottish Government and Public Services Delivery Scotland.
Continue readingRead more about financial support available for unpaid carers in Scotland.
Continue readingAs part of our 20 year anniversary, we celebrate the Scottish Sensory Hub, the important work they do, and why it matters.
Continue readingLucy Mulvagh, Director of Policy, Research and Impact, at the ALLIANCE is moving on after 10 years supporting the organisation.
Continue reading