ALLIANCE responds to Data Strategy for Health and Social Care
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 12th August 2022
The response calls for principles of human rights, trust, and transparency to be at the heart of the new strategy.
The ALLIANCE has responded to the Scottish Government’s consultation on a Data Strategy for Health and Social Care (this link will take you away from our website).
The development of Scotland’s first ever dedicated Data Strategy for Health and Social Care presents an opportunity for Scotland to become a world leader by building the infrastructure to allow people to have more choice and control over their data.
Our response is informed by consultation and engagement with our members and partners on digital health and social care policy and practice across Scotland.
Our key points and recommendations are summarised below:
- People should have full access and control to their own health and social care records to enable person centred care, greater collaboration, and ensure informed consent is in place.
- People should have the fundamental right to contribute information to their personal records.
- People should have options to allow or withdraw access to individual data.
- Where access is delegated to a trusted information, robust safeguards must be in place to mitigate risks of harm and to prevent decisions being made that would go against a person’s will and preference.
- Information on how data is being used should be clearly communicated to the public in multiple accessible formats, and following principles of inclusive communication.
- Public bodies should conduct systematic and robust data gathering on health and social care, disaggregated by protected characteristics and characteristics of other marginalised groups.
- To improve trust in how data is used, education, transparency, clarity and principles of choice and control should be embedded across digital systems.
You can read our full response via the links below.
End of document.
End of page.
You may also like:
Companions of blind and partially sighted people can now travel for free on ScotRail trains.
Continue readingThe ALLIANCE welcomes the homecare medicines review to improve care for those who need it.
Continue readingThe ALLIANCE wants to hear about your communication experiences
Continue readingRead a statement from our Chief Officer, Sara Redmond, on the recent social security announcement from the UK government.
Continue readingThe conference celebrates the range of work developed as part of Collective Advocacy facilitated by CAPS.
Continue readingThe £1m Commissioning Fund is a pivotal resource within the FORTH2O project, designed to spark investment.
Continue readingCould you help shape the future of Human Rights in Scotland? Apply to join the SNAP2 Leadership Panel
Continue readingVisit the Defib finder website to find the defibrillators closest to you.
Continue readingScottish Recovery Network are hosting a series of workshops on peer support in suicide prevention across Scotland this April.
Continue readingHave your say on what you would like to see from a future Contact Scotland BSL service.
Continue readingThe ALLIANCE and Scottish Government have produced several resources on heathy aging, in support of the Women's Health Plan.
Continue readingApril is Bowel Cancer Awareness Month, a fantastic annual opportunity to raise awareness of bowel cancer.
Continue readingThe UN ICESCR Committee has issued its recommendations and several reflect points made by the ALLIANCE and our members.
Continue readingEPI-SCOT aims to understand how knowing the cause of a young person’s epilepsy might lead to more effective treatments.
Continue readingThe report states that community health and social care finances are increasingly precarious, and encourages IJBs to work with partners.
Continue readingThis year has seen continued growth in membership, reach and impact, through our delivery of a diverse range of programmes,
Continue readingCarers Scotland launches their State of Caring in Scotland 2024 research report.
Continue readingThe ALISS team is delighted to announce the launch of ALISS Analytics, a new tool designed to provide easy access to valuable data on ALISS.
Continue readingThe Digital Citizen Panel is pleased to share the first member spotlight, highlighting member Pasna Sallis and her work with older adults
Continue readingThe ALLIANCE responds to the Equality, Human Rights, and Civil Justice Committee's inquiry into the the Public Sector Equality Duty.
Continue readingRaise awareness and support history making for the Deaf Community in Fife.
Continue readingEvery Tuesday the Discover Digital team at the ALLIANCE shares a free and trusted digital tool that supports health and wellbeing.
Continue readingOur response calls for a human rights based approach to outcomes, and to consider how to strengthen the SHRC.
Continue readingResearchers at the University of Strathclyde want to hear your opinions about what the hospitals of the future should look and feel like
Continue readingThe ALLIANCE are establishing a peer network to connect professionals working in Glasgow who are passionate about digital inclusion.
Continue reading