New Usher Syndrome Helpline
- Area of Work: Scottish Sensory Hub
- Type: News Item
- Published: 27th February 2026
National Usher Syndrome Helpline launched to provide one-stop support
Usher Syndrome is the largest genetic cause of Deafblindness.
Deafblind Scotland are delighted to announce that they have launched a completely new national helpline service.
The Usher Syndrome Helpline is run jointly with Deafblind UK allowing UK-wide coverage.
This is a first port of call for any enquiries from people living with Usher Syndrome, as well as families and carers. You can call the helpline with questions, requests for support, or if you just need someone to talk to.
To access the Helpline:
- Call 01733 973 500
- Text: 07800 008 088
- Use Contact Scotland BSL
The Helpline is free to call and open Monday to Friday, 10am – 1pm (excluding bank holidays)
For more information, visit Deafblind Scotland’s website at this link.
End of page.
You may also like:
The Scottish Diabetic eye screening programme checks for diabetic retinopathy - when diabetes causes Visual Impairment
Continue readingTwo key Peppa Pig episodes to air on TV in March 2026
Continue readingLet the British Society of Audiology know about your activities for marking the largest global awareness campaign on hearing loss
Continue readingRead manifestos from organisations representing Deafness, Deafblindness and Vision Impairment in Scotland
Continue readingLearn more about the UK’s biggest collection of eye health and sight loss data
Continue readingExplore this new resource and learn about cochlear implants
Continue readingBeware of the risks of counterfeit alcohol
Continue readingHelp build a new NHS Scotland system to enable people to share how they feel and how treatment affects their life
Continue readingIf you have a Visual Impairment and any experience of using the Access to Work scheme, please take this survey.
Continue readingNew research highlights the barriers to accessible train travel for people with Visual Impairment
Continue readingHelp improve the accessibility of NHS information on eye care
Continue readingNew guidance for all professionals working within healthcare settings
Continue readingNHS 24 Survey – improving access for people with Sensory Impairment, BSL users, or Speech Impairment
Take the survey to help make NHS 24 services more accessible
Continue readingAccessible Voter registration Focus group
Continue readingComplete this survey if you are Deaf or have Hearing Loss to help inform improvements to Access to Work
Continue readingInterview-based research highlights the experiences of people with dementia, carers, and eye care professionals
Continue readingSign LOUD report launched on International Human Rights Day
Continue readingThe ALLIANCE is delighted to support the launch of a new BSL network for public bodies.
Continue readingThe ALLIANCE has produced a briefing for the Scottish Parliament debate on BSL, taking place on 11 December 2025.
Continue readingThis work aims to better understand both the incidence and needs of children with Usher Syndrome and their families
Continue readingManifesto sets out the priorities for the future of community Optometry in Scotland
Continue readingTake part if you work in adult audiology or cochlear implantation
Continue readingNew study commissioned by the BDA assesses the socio-economic value of access to British Sign Language for Deaf children and their families
Continue readingFrom 12.01am on 1 December 2025, Deaf and Deafblind BSL users will need the new app to access the service or use the website
Continue readingTake part in an exciting research study to help design a two-way translation app between BSL and spoken English
Continue reading