Removing barriers to shared decision-making- New Patient Information Forum report released
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 2nd May 2023
Read the new PIF report on removing barriers to shared decision making in healthcare.
The Patient Information Forum and the Patients Association have published a report setting out simple steps to remove barriers to shared decision making. The aim is to help patients and healthcare professionals make the most of short appointment times.
The report is based on a co-production project which ran throughout 2022 in the Nottingham and Nottinghamshire Integrated Care Board in collaboration with the personalised care team and the My Life Choices lived experience panel.
The findings of this work have resulted in a set of recommendations for national action:
- It’s OK to Ask – A national campaign should support patients to know ‘It’s OK to Ask’ questions during appointments and prepare questions before appointments.
- My Planned Care – Non-judgemental information should be co-produced nationally to help people on waiting lists prepare mentally and physically for surgery. This information should be provided in plain language and accessible formats, and added to My Planned Care.
- About Me – About Me information should be added to the NHS App and linked to the shared care record.
- Shared care records – Shared care records need to be implemented without further delay to support shared decision making and patient safety across complex care pathways.
- Navigating the system – ICBs need to provide a clear description of care pathways in MSK and other conditions and provide consistent information and support to embed shared decision making.
Read the full report on the PIF website.
End of page.
End of page.
You may also like:
Take part in participant-led rail journey research
Continue readingThe committee wants greater involvement from lived experience to strengthen their work.
Continue readingLived experience and peer support driving mental health transformation in Scotland.
Continue readingThe new platform ‘MyCare.scot’ is being led by the Scottish Government and Public Services Delivery Scotland.
Continue readingRead more about financial support available for unpaid carers in Scotland.
Continue readingAs part of our 20 year anniversary, we celebrate the Scottish Sensory Hub, the important work they do, and why it matters.
Continue readingLucy Mulvagh, Director of Policy, Research and Impact, at the ALLIANCE is moving on after 10 years supporting the organisation.
Continue readingParties set out positions on human rights, social care and more at our hustings ahead of the 2026 Scottish Parliament Election.
Continue readingThe Digital Citizen Panel's monthly Conversation Cafe - Bring a Buddy has launched an 'On the Road' offer and is looking for hosts
Continue readingThese stories illustrate how system-minded, compassionate leadership is influencing transformation across health and social care in Scotland
Continue readingAfter the Scottish Government scrapped the initial review, the most recent proposal suggests a smaller number of broader outcomes.
Continue readingCare Roadshow Scotland to showcase leading innovation in care and latest sector updates at upcoming show.
Continue readingThis short report provides an overview of the role of housing in health and social care integration.
Continue readingWorking together to support families through a new whole household approach
Continue readingA coalition of organisations urges immediate support as rising costs threaten people most at risk across Scotland.
Continue readingYoung people’s feedback will help NHS 24 better understand needs and improve support services.
Continue readingALLIANCE input and lived experience evidence help shape stronger, person-centred and trauma-informed maternity care
Continue reading#TryAToolTuesday raises awareness of free and trusted apps and resources that help people improve and manage their health and wellbeing.
Continue readingEuropean Patients Forum announces 2026 training for young patient advocates to build skills and shape healthcare.
Continue readingTake part in this survey if you have a long term condition, are Deaf, Deafblind or have a Visual Impairment
Continue readingLearn more about the Parkrun BSL glossary and YouTube video series
Continue readingFind Lipreading classes local to you
Continue readingPaid internship opportunity for school leavers with Visual Impairment
Continue readingAn examination of the role of social workers in alleviating stigma experienced by members of the Deaf community in Ireland and the UK
Continue readingThis study is for young people aged 12–16 years living in Scotland, who are Blind or have Severe Sight Impairment
Continue reading