Family or Carer Outcomes after critical illness study
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 26th June 2026
Participate in a study into family or carer outcomes after critical illness (FOCUS), led by the University of Cambridge.
The Family or Carer Outcomes after critical illness (FOCUS): a core outcome set development study is being led by a team at the University of Cambridge, who are looking to develop a core outcome set for family members of adult critical care survivors. To do this they are asking people to complete two surveys. They are including previous patients, family members, researchers and clinicians.
Survey One: You will be asked for some basic demographic questions to make sure that we are including a diverse group of people. You will then be asked to give your opinion (using a scale from one to 10) on the importance of different outcomes for family members of adult survivors. They are excluding families and survivors from paediatric and neonate groups as they took advice from their public partners who suggested that a different group of measures might be more important. Similarly, they are excluding bereaved family members, as again, their journey is different.
Survey Two: Using a standardised process, they will look at the outcomes which were deemed to be the most important in survey one (from the results). They will ask participants to give their opinion (using a scale from one to 10) on the outcomes which remain. This survey will be very short.
To participate you must agree to complete both surveys and agree to being contacted to complete the second survey.
Survey One is now open, via the following link: https://redcap.link/Focus-Survey
Participation in each survey will take less than 10 minutes.
If you have any questions or concerns about the project, you can reach out to Joanne McPeake by emailing: joanne.mcpeake@thisinstitute.cam.ac.uk
End of page.
You may also like:
For the first time, SEMTSF is localising across Scotland, bringing the summit experience to Aberdeen, Glasgow, Fife, and Edinburgh.
Continue readingThe University of Edinburgh is conducting the SCOPE+ research study on post-abortion contraception, and wants to hear from many voices.
Continue readingHave your say on how to create a more inclusive transport system for everyone.
Continue readingYou’re Connected: new partnership with The Melting Pot offers exclusive benefits to ALLIANCE members
Access discounts to The Melting Pot’s co-working community and flexible workspaces.
Continue readingHave your say on the role of Vision Rehabilitation Assistants.
Continue readingThe survey is part of research to improve the lives of Scottish LGBTQ+ communities.
Continue readingGeneral Pharmaceutical Council are raising awareness of buying medicines from fake online pharmacies and other illegal sellers.
Continue readingSocial support group for adults with any level of Deafness or tinnitus.
Continue readingFamily Fund are calling for Scottish Government to take bold action to reduce digital exclusion amongst families with a disabled child.
Continue readingThe ALLIANCE celebrates five years since the launch of the Discover Digital Guide and wants you to help shape its refresh.
Continue readingObesity Action Scotland are hosting a focus group to hear your views on GLP-1 medicines.
Continue readingThis is your chance to help inform the Community Knowledge Matter (CKM) network.
Continue readingThe Gambling Harm and Mental Health fund is open for applicants
Continue reading#TryAToolTuesday raises awareness of free and trusted apps and resources that help people improve and manage their health and wellbeing.
Continue readingLast call for nominations for the Social Enterprise Awards Scotland.
Continue readingLast call to nominate for the Frontline Awards 2026.
Continue readingRead our published response on the voting experiences of people who are Deaf, Deafblind, or who have Visual Impairments.
Continue readingComplete this consultation if you access optometry services, support people to access eye care services, or are an eye care professional.
Continue readingFirst FIFA tournament to have sign language interpretation broadcasts for all matches.
Continue readingThe annual survey by Carers UK helps to shape campaigns and policy work, based on the experiences of unpaid carers.
Continue readingThe Self Management Fund has awarded new grants to 23 organisations across Scotland
Continue readingTheresa Campbell, MSc Psychology student, is investigating the impact of deprivation following cancer treatment.
Continue readingLived experience participation in local decision making affected: "It's draining, I have a chronic condition, hence why I'm going to stop"
Continue readingThe Practice Learning Review Consultation will remain open until 23 July 2026
Continue readingRead our updated members handbook to discover the benefits of your ALLIANCE membership.
Continue reading