Removing barriers to shared decision-making- New Patient Information Forum report released
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 2nd May 2023

Read the new PIF report on removing barriers to shared decision making in healthcare.
The Patient Information Forum and the Patients Association have published a report setting out simple steps to remove barriers to shared decision making. The aim is to help patients and healthcare professionals make the most of short appointment times.
The report is based on a co-production project which ran throughout 2022 in the Nottingham and Nottinghamshire Integrated Care Board in collaboration with the personalised care team and the My Life Choices lived experience panel.
The findings of this work have resulted in a set of recommendations for national action:
- It’s OK to Ask – A national campaign should support patients to know ‘It’s OK to Ask’ questions during appointments and prepare questions before appointments.
- My Planned Care – Non-judgemental information should be co-produced nationally to help people on waiting lists prepare mentally and physically for surgery. This information should be provided in plain language and accessible formats, and added to My Planned Care.
- About Me – About Me information should be added to the NHS App and linked to the shared care record.
- Shared care records – Shared care records need to be implemented without further delay to support shared decision making and patient safety across complex care pathways.
- Navigating the system – ICBs need to provide a clear description of care pathways in MSK and other conditions and provide consistent information and support to embed shared decision making.
Read the full report on the PIF website.
End of page.
End of page.
You may also like:
The Scotland Reducing Gambling Harm (ScotRGH) programme has awarded new grants totalling £375,000 to 19 projects across Scotland
Continue readingA newly identified security vulnerability affecting PHP software used by millions of websites worldwide requires immediate attention.
Continue readingFind out more about this pilot service for BSL users in Scotland.
Continue readingA phased campaign supports earlier CKD recognition, helping healthcare professionals deliver timely care and improve patient outcomes.
Continue readingOur response warns that Scotland cannot achieve a sustainable health & care system without greater investment in prevention and social care
Continue readingScottish Women and Girls in Sport Week 2026, organised by Active Scotland, runs 2-8 November.
Continue readingShare your experience to help shape Scotland’s work on antimicrobial resistance and infection prevention through national engagement.
Continue readingReport mapping the supports and services in place across Scotland during pregnancy and into the first few months of a baby’s life.
Continue readingPhD researchers from The Glasgow School of Art are seeking participants.
Continue readingWhat's working, what still needs to change and what Scotland must do to ensure every child can realise their right to the best health.
Continue readingA current research project is exploring the physical challenges faced day-to-day in care, both by carers and by the people they support
Continue readingYour feedback will shape an updated version of the toolkit.
Continue readingThe Scottish Transitions Forum hosted by ARC Scotland have launched the Compass National Data report for 2025-26.
Continue readingAre you blind or partially sighted? Share your experience of food packaging in a short UK-wide survey.
Continue readingFour free traineeships available in Scotland.
Continue readingLearn more about ishush - a free online support programme for adults with hyperacusis.
Continue readingApply to support equalities groups in Renfrewshire.
Continue readingConsultation launched for parents/carers, people with lived experience, and professionals.
Continue readingLearn more about Posterior Cortical Atrophy and why sensory care matters.
Continue readingNesta launch new report 'Getting it right for every baby' highlighting key challenges in the existing landscape of support.
Continue readingThe Oversight Board for the promise has launched their fourth report into Scotland’s progress in keeping the promise.
Continue readingUrgent investment needed to deliver fair, person centred social care in Scotland, say the ALLIANCE.
Continue readingOur presentation noted the negative effects of social care charging on human rights including health and adequate standard of living.
Continue readingThe ALLIANCE publishes report outlining key learning from the delivery of Self Management for Life 2024 Small Grants.
Continue readingFor Menopause Month in October, the ALLIANCE and Scottish Government have brought together all our resources on menopause in one pack.
Continue reading