ALLIANCE Live: Stuck in institutions with no hope for Coming Home
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 17th November 2022
An expert panel discusses concerns over the Coming Home Implementation Report and what actions can be taken to achieve meaningful change.
A new ALLIANCE Live roundtable conversation has now been published. Focusing on the Coming Home Implementation Report, contributors to the discussion unpick the ways in which the report has let many disabled people and their families down.
The discussion is led by ALLIANCE Chief Officer, Sara Redmond with contributions from C-Change Chief Executive, Sam Smith, journalist and campaigner, Michael McEwan, disability activist, Jim Elderwood-Ward, and Ruth Hughes, mum to Gordon who has been kept in an institution for longer than he needs to be.
The panel touch on a range of themes throughout the conversation including housing, human rights, and learning from the past. Ruth provides a powerful account of the experiences she and her son currently face due to the failure of the government that this report represents.
“Really there is no going back because once what happened with Gordon, once he got into the system, the wrong decisions were made. The appropriate care wasn’t there. The appropriate placement for care, which led to him being where he is now. And it really has had a catastrophic effect.”
Sara goes on to ask the panel what action can be taken to reassure them that change is still possible. For Sam Smith that meant looking towards the creation of the National Care Service.
“If we can evidence that we can support this relatively small group of people well, you know, respecting and protecting their rights, actually looking at providing personalised support then surely that would give us all some confidence that when it comes to this bigger programme rollout that we can be hopeful.”
C-Change has submitted a letter to the Scottish Government outlining the various actions that can be taken to ensure meaningful change is achieved. An easy-read version of the submission is also available in the resources section below.
To watch the roundtable discussion in full visit the ALLIANCE YouTube channel (this link will take you away from our website).
To listen to the podcast go to ALLIANCE Live on Spotify or on Anchor.FM (this link will take you away from our website).
End of page.
You may also like:
Participate in a study into family or carer outcomes after critical illness (FOCUS), led by the University of Cambridge.
Continue readingLast call to nominate for the Frontline Awards 2026.
Continue readingRead our published response on the voting experiences of people who are Deaf, Deafblind, or who have Visual Impairments.
Continue readingComplete this consultation if you access optometry services, support people to access eye care services, or are an eye care professional.
Continue readingFirst FIFA tournament to have sign language interpretation broadcasts for all matches.
Continue readingThe annual survey by Carers UK helps to shape campaigns and policy work, based on the experiences of unpaid carers.
Continue readingThe Self Management Fund has awarded new grants to 23 organisations across Scotland
Continue readingTheresa Campbell, MSc Psychology student, is investigating the impact of deprivation following cancer treatment.
Continue readingLived experience participation in local decision making affected: "It's draining, I have a chronic condition, hence why I'm going to stop"
Continue readingThe Practice Learning Review Consultation will remain open until 23 July 2026
Continue readingRead our updated members handbook to discover the benefits of your ALLIANCE membership.
Continue readingThe MyCare app is available in the App Store and Play Store.
Continue readingMulti-year funding was at the centre of the Scottish Parliament debate on a Third Sector Partnership Agreement
Continue readingApply for this highly regarded leadership development offer from Leading to Change and PSD Scotland.
Continue readingThe Self Management Programme is changing to focus on the Fund, share learning, and support better health and wellbeing in Scotland.
Continue readingTogethers' new training and consultancy offers are now live.
Continue readingThe ALLIANCE joins 54 signatories in calling for accessible news and equal access to information for all.
Continue readingRead the full response to the Equality and Human Rights Commission’s (EHRC) Code of Practice
Continue readingA new app from the Scottish Association for Supported Employment (SUSE) for helping people stay well in work
Continue readingFree self management and wellbeing resource for everyone helping young people with their wellbeing.
Continue readingThe date for this year's DiGiTal Get Together has been announced
Continue readingWe have published our conference report from our annual conference Hope to Action as we look to the future and the work still to be done.
Continue readingNew guidance supports Audiology services to design and develop clinical peer review schemes to support quality assurance.
Continue readingRegister for this paid Advisory Panel opportunity
Continue readingTake a short survey to share your experiences
Continue reading