Neurological Programme Review of 2018
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 7th January 2019
Our Neurological programme team review activities over 2018 for our annual report.
At the beginning of the year, the Neurological Programme embarked on its Lived Experience Project to explore what the key priorities are for people living with neurological conditions. This was initially to support the work of the National Advisory Committee for Neurological Conditions but has since supported other initiatives.
The Lived Experience Project was undertaken in collaboration with the Neurological Alliance of Scotland and engaged with a wide range of people living with a neurological condition to understand their experiences of accessing services and to develop recommendations and priorities for the future to enhance their health and wellbeing. Initially, this involved collating existing evidence from different conditions from a range of sources, including the third sector. Following this focus groups were held in order to ensure that the themes identified were inclusive and reflective of the voice of lived experience. Findings from these exercises shaped a survey that was widely distributed and helped to further substantiate the themes and priorities. In total the project heard from over 600 people living with a neurological condition.
This work has been the foundation of Neurological Programme activity in 2018. The Neurological Programme has been part of the Project Group that drafted the National Action Plan for Neurology which is now out for consultation. On top of this, the Lived Experience Project has been used to feed into the development of the General Standards for Neurological Care and Support which the Neurological Programme has been supporting. The Neurological Programme has also been invited to join the Scottish Access Collaborative Neurology Workstream which is exploring how to improve access to services but looking at pathways. The Lived Experience Project is once again forming the basis of the contributions to this.
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