IBD UK publish new national report
- Area of Work: The ALLIANCE
- Type: News Item
- Published: 24th May 2021

The new report assesses the current state of Crohn’s and Colitis care in the UK.
IBD UK is a partnership of 17 professional bodies, royal colleges and patient organisations working together to improve care and treatment for everyone affected by Inflammatory Bowel Disease (IBD). Included amongst these partnership organisations is Crohn’s & Colitis UK, a member of the ALLIANCE.
The report’s findings are based on the results of the 2019/20 IBD Benchmarking Tool, which brought together the experiences of over 10,000 people with Crohn’s and Colitis and 72% of IBD services across the UK.
It reveals that care urgently needs to be improved. In particular:
- Adults and children are waiting too long for a diagnosis of Crohn’s or Colitis;
- The wider symptoms of Crohn’s and Colitis, such as pain, fatigue and emotional wellbeing are often not addressed;
- People are not getting specialist advice and treatment quickly enough;
- There are not enough specialists, including IBD nurse specialists, dietitians and psychologists and care is often not joined up.
End of page.
You may also like:
Prevention work in communities is under pressure according to the findings of a new report out today.
Continue readingShare your views to shape the national social prescribing framework.
Continue readingResponses to two committees note that increasing investment in prevention is necessary to deliver longer term savings.
Continue readingResearchers are looking for input into menopause and cognition study to improve support.
Continue readingJoin our Children and Young People Community of Practice for new learning and opportunities to connect and share.
Continue readingThe Scottish Government have launched their Stories of Impact during the 20 Year Anniversary of GIRFEC
Continue readingHealthcare Improvement Scotland are recruiting for two Non-Executive Directors to join the Board.
Continue readingApplications now open for a Programme and Engagement Coordinator (Children and Young People)
Continue readingFindings from the survey will help influence and inform the policies towards supporting LGBT young people.
Continue readingThe new resource brings together contributions from across the third sector, including the ALLIANCE, to make the case for fair funding.
Continue reading#TryAToolTuesday raises awareness of free and trusted apps and resources that help people improve and manage their health and wellbeing.
Continue readingThe Digital Health & Social Care team are pleased to announce the registration for our annual DiGiTal Get Together on 21 October is now open
Continue readingCall for participants with Deafness to take part in a project about incomplete sensory information.
Continue readingAccessible research for people who are Deaf, Deafblind or who have a Visual Impairment.
Continue readingTake part if you are aged 18 years or over with any level of Visual Impairment and any experience of PTSD
Continue readingTake part if you are a CODA over the age of 16 years old.
Continue readingHelp hearing health be recognised as a global priority.
Continue readingFind out what's on and attend accessible events.
Continue readingHelp shape the future of glaucoma care.
Continue readingTake part in a Lived Experience Advisory Group.
Continue readingOur response highlights the needs of people who are Deaf, Deafblind or who have a Visual Impairment.
Continue readingYou can get involved by responding to their call for evidence or joining their community of interest.
Continue readingBy sharing your views, you are directly taking part in changing things for the better for young women and girls.
Continue readingDedicated to supporting disabled young people aged 16–25 achieve positive futures.
Continue readingDigiKnowVember is Renfrewshire’s annual celebration of digital inclusion.
Continue reading