The new report assesses the current state of Crohn’s and Colitis care in the UK.
IBD UK is a partnership of 17 professional bodies, royal colleges and patient organisations working together to improve care and treatment for everyone affected by Inflammatory Bowel Disease (IBD). Included amongst these partnership organisations is Crohn’s & Colitis UK, a member of the ALLIANCE.
The report’s findings are based on the results of the 2019/20 IBD Benchmarking Tool, which brought together the experiences of over 10,000 people with Crohn’s and Colitis and 72% of IBD services across the UK.
It reveals that care urgently needs to be improved. In particular:
- Adults and children are waiting too long for a diagnosis of Crohn’s or Colitis;
- The wider symptoms of Crohn’s and Colitis, such as pain, fatigue and emotional wellbeing are often not addressed;
- People are not getting specialist advice and treatment quickly enough;
- There are not enough specialists, including IBD nurse specialists, dietitians and psychologists and care is often not joined up.